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What do you need to know about tuberous sclerosis complex (TSC)?

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If you have tuberous sclerosis complex (TSC), your cells don’t stop dividing when they should. This means you get tumors in lots of places in your body. They aren’t cancer, but they can cause problems where they’re growing. There are treatments available that can shrink the tumors and make you more comfortable.

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

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