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What is living with sickle cell disease like?

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Living with sickle cell disease can be hard, especially for children. People who are in pain often may have problems with anxiety and depression.

If you feel stressed, sad, or overwhelmed, counseling or psychotherapy may help. Talking about your problems with a mental health professional can help you find healthy ways to handle pain and other challenges.

Also, ask your doctor or nurse about support groups where you can connect with other people and families living with sickle cell disease.

SOURCES:

National Heart, Lung, and Blood Institute: “Sickle Cell Disease.”

CDC: “Sickle Cell Disease - Complications and Treatments.”

Pediatric Blood and Cancer : “Impact of individualized pain plan on the emergency management of children with sickle cell disease.”

Current Opinions in Hematology : “Acute pain in children and adults with sickle cell disease: management in the absence of evidence-based guidelines.”

American Family Physician : “Management of Sickle Cell Disease: Recommendations from the 2014 Expert Panel Report.”

News release, U.S. Food and Drug Administration: “FDA approves hydroxyurea for treatment of pediatric patients with sickle cell anemia.”

Journal of the Royal Society of Medicine: “Management of pain in sickle-cell disease.”

Blood: “Evolution of Chronic Pain in Sickle Cell Disease.”

Child Psychiatry and Human Development: “Symptoms of depression and anxiety in adolescents with sickle cell disease.”

Journal of the National Medical Association : “Health-Related Stigma in Young Adults With Sickle Cell Disease.”

British Journal of Haematologydisease: “Psychological complications in sickle cell .”

Reviewed by Melinda Ratini on March 06, 2018

SOURCES:

National Heart, Lung, and Blood Institute: “Sickle Cell Disease.”

CDC: “Sickle Cell Disease - Complications and Treatments.”

Pediatric Blood and Cancer : “Impact of individualized pain plan on the emergency management of children with sickle cell disease.”

Current Opinions in Hematology : “Acute pain in children and adults with sickle cell disease: management in the absence of evidence-based guidelines.”

American Family Physician : “Management of Sickle Cell Disease: Recommendations from the 2014 Expert Panel Report.”

News release, U.S. Food and Drug Administration: “FDA approves hydroxyurea for treatment of pediatric patients with sickle cell anemia.”

Journal of the Royal Society of Medicine: “Management of pain in sickle-cell disease.”

Blood: “Evolution of Chronic Pain in Sickle Cell Disease.”

Child Psychiatry and Human Development: “Symptoms of depression and anxiety in adolescents with sickle cell disease.”

Journal of the National Medical Association : “Health-Related Stigma in Young Adults With Sickle Cell Disease.”

British Journal of Haematologydisease: “Psychological complications in sickle cell .”

Reviewed by Melinda Ratini on March 06, 2018

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