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What organization can help you with tuberous sclerosis complex (TSC)?

ANSWER

The National Organization for Rare Diseases or the Tuberous Sclerosis Alliance can help you find a TSC clinic and an online or local support group.

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

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