PREVIOUS QUESTION:

 

NEXT QUESTION:

 

What should you ask your doctor when you have tuberous sclerosis complex (TSC)?

ANSWER

  • How fast might my tumors grow?
  • How do they cause the symptoms?
  • How might my symptoms change over time?
  • What treatments can I try? What are the possible complications from them?
  • When do I need to go to the ER?
  • Should the rest of my family be tested?
  • If I have another baby (or if my child has a child), what are the chances that the baby will have TSC?
  • Is there a local support network for families affected by this condition?

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

NEXT QUESTION:

How is tuberous sclerosis complex (TSC) in your kidneys treated?

WAS THIS ANSWER HELPFUL

"ALEXA, ASK WEBMD"

THIS TOOL DOES NOT PROVIDE MEDICAL ADVICE. It is intended for general informational purposes only and does not address individual circumstances. It is not a substitute for professional medical advice, diagnosis or treatment and should not be relied on to make decisions about your health. Never ignore professional medical advice in seeking treatment because of something you have read on the WebMD Site. If you think you may have a medical emergency, immediately call your doctor or dial 911.

    This tool does not provide medical advice. See additional information.

    Other Answers On: