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Where can I get information about primary immunodeficiency disease (PIDD) treatments and support groups?

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The Immune Deficiency Foundation website can help you find a doctor for those who have primary immunodeficiency disease (PIDD), and it can put you in touch with a support group. The site also has information about clinical trials. These test new drugs to see if they're safe and how well they work. Trials are a way for people to try medicines that aren't available to everyone. Your doctor can tell you if this is a good option for your child.

From: Primary Immunodeficiency WebMD Medical Reference

Reviewed by Dan Brennan on September 11, 2018

Medically Reviewed on 09/11/2018

SOURCES:

American Academy of Asthma, Allergy and Immunology: "Primary Immunodeficiency Disease."

Boston Children's Hospital: "Primary Immunodeficiency."

CDC: "Newborn Screening: Severe Combined Immunodeficiency," "Severe Combined Immunodeficiency."

Children's Hospital of Wisconsin: "Bone Marrow Transplantation."

Immune Deficiency Foundation: "Patient & Family Handbook."

National Institute of Allergy and Infectious Diseases: "Primary Immunodeficiency Diseases."

Rare Diseases Clinical Research Network: "Learn More About Primary Immune Deficiency."

Cambridge University Hospitals: "Antibiotics for adults with primary immunodeficiency."

Reviewed by Dan Brennan on September 11, 2018

SOURCES:

American Academy of Asthma, Allergy and Immunology: "Primary Immunodeficiency Disease."

Boston Children's Hospital: "Primary Immunodeficiency."

CDC: "Newborn Screening: Severe Combined Immunodeficiency," "Severe Combined Immunodeficiency."

Children's Hospital of Wisconsin: "Bone Marrow Transplantation."

Immune Deficiency Foundation: "Patient & Family Handbook."

National Institute of Allergy and Infectious Diseases: "Primary Immunodeficiency Diseases."

Rare Diseases Clinical Research Network: "Learn More About Primary Immune Deficiency."

Cambridge University Hospitals: "Antibiotics for adults with primary immunodeficiency."

Reviewed by Dan Brennan on September 11, 2018

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