[WATER SPLASHING]
[MUSIC PLAYING]
JAIME MOY: My story
with psoriatic arthritis
actually begins with my son
Andy, who was diagnosed at age
five.
It was when he was
in kindergarten that his gym
teacher called to tell us
that Andy wasn't meeting any
of his physical benchmarks.
He was falling down.
He was not able to jump rope.
It was quite a shock.
We didn't know that kids could
get arthritis.
But we knew that he needed
something, because it was very
difficult for him to get out
of bed in the morning.
He had to cycle through a lot
of medications
because they would start
to work, and then they would
lose their effectiveness.
There would even be times
he would be hurting so much
that he would have to ride
in a wheelchair.
ANDY MOY: I do remember
in early elementary school
just me having a lot of pain
and not being able to move.
It did make things difficult.
I'm not able to write as much
as other kids.
I'm not able to move as fast
as they could.
So it would be hard to keep up.
My hands would swell up
to the point
where I couldn't hold a pencil.
Some days it'd become so
difficult I couldn't even tie
my shoes.
JAIME MOY: It was about three
years after Andy was diagnosed
that I started having signs
and symptoms
of psoriatic arthritis,
and that's when I got
my diagnosis.
I was so independent
before that, and now, all
of a sudden, I couldn't drive.
Vacuuming.
All these simple things that I
had taken for granted,
now my husband really
had to step in.
He did it with such grace
and love.
MR. MOY: Well, one
of the things that this disease
requires
is a level of understanding.
Oftentimes, we'll have to keep
in mind that we have to pace
ourselves, so it definitely
requires more patience.
As a husband and father,
I was willing to do whatever
needed to be done to help them.
ANDY MOY: When I was younger
when I was having difficulty
walking, my dad would carry me
around on his back and shoulders
so I could still be around
and with the family.
[WHEELS RATTLING]
[MUSIC PLAYING]
[CHEERS AND APPLAUSE]
What helps now that manages
the pain is I'm
on a fairly regular medication.
Other than that,
I do long showers to help
and relax my muscles.
I took on robotics near the end
of middle school to high school.
Working with the robotics
does help a little bit
with my arthritis,
because it gives me something
to keep my mind occupied.
So it makes me see how things
move differently,
and I always find how anything
moves interesting.
Because any type of movement
throughout my life
is challenging.
JAIME MOY: Besides taking
medication, which has really
helped manage my disease,
I like to exercise.
I also do yoga.
I also go swimming
with my friend.
The warm water is nice.
It helps on the joints,
and it also relieves my stress.
The more I can keep my stress
level down, the better
my disease is overall.
One key program that has been
very near and dear to our hearts
is a week-long camp
in the summer for kids
with juvenile arthritis.
ANDY MOY: Attending camp
definitely helped
with my childhood.
I got to be a kid.
I got to talk to other kids who
went through what I did.
I am going back this year
to volunteer.
I do want to give back
to the youth that went
through a lot of what I had
to go through.
JAIME MOY: Well, when he was
first diagnosed,
I didn't know what his life
would be.
And now that he's 20 years old,
I see a great kid.
He's grown up, and he's done all
of the same things
that his friends have done.
Maybe they've been a little bit
different.
Instead of doing sports,
he did robotics.
He still went to school.
He still got good grades.
That alone is pretty awesome.
But when you think
about the fact of how much he's
had to overcome,
it makes it that much more
special.
Having Andy have the disease,
and I also had the disease,
we're able to help each other
out.
ANDY MOY: While I was growing
up, it made it easier for us
to understand each other.
And we could also help one
another easier
when we were in pain.
JAIME MOY: Our lives still
go on.
When I'm having a bad day,
he's there to just give me
a hug.
And just having that
makes it easier to live
with the disease as a whole.
[MUSIC PLAYING]