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How can I help my child manage their inherited lipodystrophy?

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Because this condition affects how someone looks, care and compassion are as important as medicine. Focus on keeping your child healthy and giving her a meaningful, rewarding life. Do what you can to boost self-esteem. Try to focus your praise on achievements, rather than appearance. Think about getting professional counseling. Someone with training can help your child and your family sort out their feelings as they deal with the challenges of this disease.

From: Inherited Lipodystrophy WebMD Medical Reference

SOURCES:

NORD Physician Guides: "Lipodystrophy Disorders."

FDA: "FDA approves Myalept to treat rare metabolic disease."

Lipodystrophy United: "About Lipodystrophy."

University of Texas Southwestern Medical Center: "Lipodystrophy," "Lipodystrophy Therapies."

Genetics Home Reference: "Berardinelli-Seip congenital lipodystrophy."

KidsHealth: "Acanthosis Nigricans."

AACE Lipodystrophy Detection Consensus Statement, , January-February 2013. Endocrine Practice

Endocrine Society, Resource Room Slide Series: "Lipodystrophy: Metabolic and Clinical Aspects."

DermNet NZ: "Lipodystrophy."

Orphanet: "Berardinelli-Seip congenital lipodystrophy," "Familial partial lipodystrophy, Köbberling type," "Familial partial lipodystrophy, Dunnigan type," "Familial partial lipodystrophy associated with PPARG mutations."

Reviewed by Jennifer Robinson on February 02, 2019

SOURCES:

NORD Physician Guides: "Lipodystrophy Disorders."

FDA: "FDA approves Myalept to treat rare metabolic disease."

Lipodystrophy United: "About Lipodystrophy."

University of Texas Southwestern Medical Center: "Lipodystrophy," "Lipodystrophy Therapies."

Genetics Home Reference: "Berardinelli-Seip congenital lipodystrophy."

KidsHealth: "Acanthosis Nigricans."

AACE Lipodystrophy Detection Consensus Statement, , January-February 2013. Endocrine Practice

Endocrine Society, Resource Room Slide Series: "Lipodystrophy: Metabolic and Clinical Aspects."

DermNet NZ: "Lipodystrophy."

Orphanet: "Berardinelli-Seip congenital lipodystrophy," "Familial partial lipodystrophy, Köbberling type," "Familial partial lipodystrophy, Dunnigan type," "Familial partial lipodystrophy associated with PPARG mutations."

Reviewed by Jennifer Robinson on February 02, 2019

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What complications can happen with inherited lipodystrophy?

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