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What should I expect for my child with Hunter syndrome (MPS II)?

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Some boys with less severe Hunter syndrome grow up and live long lives. They'll go through puberty like other teens and can have children. But heart disease and trouble breathing can still cause problems for them.

Kids with severe Hunter syndrome are less likely to reach adulthood. Their brains will slowly stop working, and eventually they'll need special care to make them comfortable.

Parents of other Hunter syndrome boys are a great resource for understanding what's going on, sharing your feelings, and getting ideas for how to live with the condition. You can find ways to enjoy the time that you have with your child.

From: Hunter Syndrome (MPS II) WebMD Medical Reference

SOURCES:

American Academy of Pediatrics: "Multidisciplinary Management of Hunter Syndrome."

Mucopolysaccharide & Related Diseases Society Australia: "A Guide to Understanding Hunter Syndrome (mucopolysaccharidosis type II; MPS II)."

National MPS Society: "MPS II;" "Daily Living with MPS and Related Diseases;" and "A Guide to Understanding MPS II."

NIH National Library of Medicine: "Mucopolysaccharidosis type II."

Wraith, J. , March 2008. European Journal of Pediatrics

Reviewed by Nayana Ambardekar on June 18, 2018

SOURCES:

American Academy of Pediatrics: "Multidisciplinary Management of Hunter Syndrome."

Mucopolysaccharide & Related Diseases Society Australia: "A Guide to Understanding Hunter Syndrome (mucopolysaccharidosis type II; MPS II)."

National MPS Society: "MPS II;" "Daily Living with MPS and Related Diseases;" and "A Guide to Understanding MPS II."

NIH National Library of Medicine: "Mucopolysaccharidosis type II."

Wraith, J. , March 2008. European Journal of Pediatrics

Reviewed by Nayana Ambardekar on June 18, 2018

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THIS TOOL DOES NOT PROVIDE MEDICAL ADVICE. It is intended for general informational purposes only and does not address individual circumstances. It is not a substitute for professional medical advice, diagnosis or treatment and should not be relied on to make decisions about your health. Never ignore professional medical advice in seeking treatment because of something you have read on the WebMD Site. If you think you may have a medical emergency, immediately call your doctor or dial 911.

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