This medication is used to help preserve kidney function and manage kidney damage and other problems in people with an inherited disorder (nephropathic cystinosis) that causes buildup of a certain natural substance (cystine) in the body. Cystine buildup can cause problems such as kidney problems, slow growth, weak bones, and eye problems. Cysteamine helps the body get rid of cystine.
How to use
Read the Patient Information Leaflet and Instructions for Use if available from your pharmacist before you start using cysteamine and each time you get a refill. If you have any questions, ask your doctor or pharmacist.
To use, open the packet and sprinkle the contents on 4 ounces (1/2 cup) of applesauce or berry jelly and eat the mixture within 30 minutes of preparing it. Or you can sprinkle the contents into 4 ounces (1/2 cup) of fruit juice (except for grapefruit juice), stir the mixture gently until mixed, and drink it within 30 minutes. Do not crush or chew the mixture or save it for later use.
Taking this medication with other food can affect its absorption. Take this medication on an empty stomach, at least 2 hours after or at least 30 minutes before eating food. If you cannot take it without eating, you can eat a small amount of food (4 ounces or 1/2 cup) within 1 hour before and 1 hour after taking this medication. Choose one way to take this medication (either without eating or with a small amount of food) and take it the same way with every dose. Avoid high-fat food close to the time you take your cysteamine dose.
The dosage is based on your weight, medical condition, and response to treatment. To reduce your risk of side effects, your doctor may direct you to start this medication at a low dose and gradually increase your dose. Follow your doctor's instructions carefully.
Do not drink alcohol while you are being treated with this drug. Drinking alcohol may increase the amount of this medication in your body, which may cause serious side effects.
Take this medication regularly to get the most benefit from it. To help you remember, take it at the same times each day.
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CONDITIONS OF USE: The information in this database is intended to supplement, not substitute for, the expertise and judgment of healthcare professionals. The information is not intended to cover all possible uses, directions, precautions, drug interactions or adverse effects, nor should it be construed to indicate that use of a particular drug is safe, appropriate or effective for you or anyone else. A healthcare professional should be consulted before taking any drug, changing any diet or commencing or discontinuing any course of treatment.