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4.4 Overall Rating

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Most voted positive review

14 People found this comment helpful

the drug manufacturers don't tell us about hair loss, brain damage, severe depression, hallucinations, spinal cord damage, memory loss, cognitive problems, shaking, etc. I've been on it for 5 years and my pre-prograf MRI of my brain was fine. Now I have brain damage. I've also been diagnosed as severely bi-polar, and my once thick hair is all but gone!

Most voted negative review

2 People found this comment helpful

Lots of side effects, hair loss is severe. Tingling, blurred vision, and insomnia. I am very thankful for my liver. Six months tomorrow 8/5/2014.

Shared reviews and ratings

45packer | 65-74 | Male | On medication for 10 years or more | Patient
2/28/2021
Condition: Prevention of Liver Transplant Rejection
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I am a 22 year survivor of a liver transplant. I have been on this product for the entire time. HOWEVER I have reduced my dosage to zero over the last 3 years. I had just about all the symptoms, pain, weakness, insomnia, digestive issues (diarrea). I could go on and on but we all know what it does. Constant bloodwork AST/ALT during this time has shown the my liver is doing great with no issues. Other than feeling a million times better being off this stuff, my Doc is amazed that there are no issues. We still monitor the usual things and stay on top of it . After 22 years I know my body, and I know I have regained my life. I just had my 66th birthday!! I have a great Doc that worked with me and I DO NOT recommend doing what I did unless you have a GREAT Doc to help through it, but I would say try to talk to the Doc about taking baby steps in reducing your dose even a little bit. In 1999 when I had my transplant I was taking 8mg daily. After one year of suffering all those side effects, we reduced the dosage to half 4mg. After 5 years we went down to 2mg and I stayed with that dose for ten more years. The last 3 years its' 1mg a day. Then 1mg every other day then once a week and now ZERO. Again, I have a tremendous Doc who worked with me and the GI the entire time. DO NOT DO THIS YOURSELF, IT TAKES A GREAT DOCTOR TO HELP ONE THROUGH THIS, CONSTANT MONITORING OF BLOODWORK AND THE USUAL CHECK UPS MUST BE DONE. I have a new life and my wife thinks I'm a horny teenager(almost) LOL

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Joe Bellnier | 45-54 | Male | On medication for 1 to less than 2 years | Patient
11/22/2017
Condition: Prevent of Transplant Rejection
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I had pancreas transplant 13 months ago been on prograf only complaint I have is the shakiness, tremors in my hands.

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helen | 65-74 | Female | On medication for 1 to 6 months | Patient
11/21/2017
Condition: Prevent Kidney Transplant Rejection
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

baldness and tremors

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Anonymous | 45-54 | Female | On medication for 10 years or more | Patient
1/29/2017
Condition: Prevention of Liver Transplant Rejection
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
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sophie | 13-18 | On medication for 10 years or more | Patient
6/28/2016
Condition: Prevention of Liver Transplant Rejection
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I had a liver transplant when I was only two and a half years old, and have been taking prograf since day one. This medicine is hard on my kidneys, which causes me to have high blood pressure, but I am given another med to help with that. This new years eve will be my 12 year "liver-virsery" and I have not gone into rejection thanks to prograf. I must say that this med along with a few others(CellCept)(Enalapril)are the reason I'm here today.

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