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4.0 Overall Rating

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Most voted positive review

17 People found this comment helpful

Privigen has given me so much more energy to be able to do activites with my son and husband! It is also keeping me from getting infections that I would normally have all the time. The only thing is the bad headache I have for days after infusing. My rate is very slow and I infuse for 8 hours, but still have it. The rewards out weigh the side effects!!

Most voted negative review

3 People found this comment helpful

I never was infection free after a year and a half. I was still ALWAYS SICK WITH SINUS INFECTIONS. the side effects were minor and when I was well with no infection I felt great. I would recommend this to anyone who has this nasty condition. It was do able, my body just didn't stay well? feel free to write me,,,

Shared reviews and ratings

Walters | 55-64 | On medication for 1 to 6 months | Patient
7/18/2017
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Very effective but with some side effects. My first dose was of 2mg/kg. I weigh 80kg , so I had 8 bottles(20mg/bottle) of 200ml each over a period of 36 hrs.I had very high blood pressure and sever headache for a week after the infuus. My CIDP symptoms vanished from day 2 and I could walk without pain and no tingling in hands or feet. After consulting my neurologist I am taking now half the dose every six week. Takes 6 to 7 hrs stay at the hospital. No overnight stay. I still have high blood pressure and headache after every treatment.

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Robt | 75 or over | Male | On medication for 1 to 6 months | Patient
2/3/2017
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have an IVIG every four weeks. The infusion center's pharmacy switched to Privigen from Octagam. They seem equally effective - breathing and muscle response improves after an IVIG and slowly gets worse. Privigen is more concentrated so IVIG is not as long. Also it is not sugar based.

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Anonymous | Female | On medication for 10 years or more | Patient
1/30/2017
Condition: Common Variable Agammaglobulinemia
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

i have common variable immune defeciency. i recieve it every once a month

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Bill | 65-74 | Male | On medication for 2 to less than 5 years | Patient
2/3/2015
Condition: Prevention of Bacterial Infection in Chronic Lymphocytic Leukemia
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Privigen has been a lifesaver for me. Before starting with IVIG treatments, I had frequent colds and other illnesses. A common cold would keep me in bed for 2 days minimum and thinking I would not survive. My infusions started at 60 grams (600 ml) and now I receive 400 ml monthly for 6-7 months each year. I am rarely sick and my IgG counts have gone from about 200 to 900+ (normal range is 610 to 1,616). Finally, I have had no adverse side effects. The treatment is very expensive because of the drug's cost (but covered by insurance at a much lower approved rate).

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NKB | 55-64 | Female | On medication for 2 to less than 5 years | Patient
10/23/2014
Condition: Primary Immune Deficiency Disorder
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I would say that the infusions are working really well as it keeps me out of hospital and ICU. After the very first infusion I was chilled, had a bad headache, and was exhausted. My husband had to bring me out to the car in a wheelchair. I now take an antihistamine and acetaminophen prior to the infusion and now drive myself to and from treatments. Sometimes I feel invigorated afterward and other times I just want to go home and rest or sleep. I used to get a really bad headache two days after an infusion. This happened 3 months in a row then disappeared. There was a small decrease in dosage around the time the headaches stopped,so I don't know if that had anything to do with it or not. In the two years I've had infusions I've only been sick three times. One event was mild and treated with OTC drugs. Two events were more involved and treated with antibiotics. No hospital stays or ICU. That was huge! Before being diagnosed with CVID I was always in trouble with any kind of strep infection, resulting in sepsis. Getting infused every four weeks is small inconvenience compared to what I have been through with hospital stays in ICU, plus rehab. Life is much improved. I'm no longer terrified if I get a cough, sore throat, runny nose, or sinus congestion, etc. Life is good once again!

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