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4.1 Overall Rating

Effectiveness

Ease of Use

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Most voted positive review

15 People found this comment helpful

REDUCED CHOREA BIG TIME. NO MENTAL SIDE EFFECTS SUCH AS DEPRESSION ETC. DIAGNOSED WITH HUNTINGTON'S IN 2000. STARTED TAKING DRUG PRIOR TO FDA FULL APRROVAL THROUGH A PROGRAM A XXX DUKE.

Most voted negative review

1 People found this comment helpful

I have given this to my wife who has Huntingtons for 7 weeks.I have not seen any improvement yet.I have noticed more depression using it.We have a Doctors app. 1/5/09.Maybe he can help.

Shared reviews and ratings

austinpj | 75 or over | Female | On medication for 1 to 6 months | Patient
5/8/2013
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I am having excessive head and neck sweating.

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stoilk | 65-74 | Male | On medication for 2 to less than 5 years | Patient
3/30/2013
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Was on Zyprexa before this was available.Continuing on Zyprexa and 75mg dose of xenezine. Has been very helpful, but not consistent. No side effects.

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Anonymous | 25-34 | Female | On medication for 5 to less than 10 years | Patient
2/6/2013
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I take this medication for Tourette Syndrome...Have been taking for at leat 7 years. Was on it before FDA approval. Have helped with tics tremendously. Wonderful drug for me. I always have had depression...on Cymbalta for that.

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malone305 | 25-34 | Female | On medication for 1 to less than 2 years | Patient
10/30/2012
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Most of my involuntary movements have gone away since I started taking this drug about a year ago

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Challenger | 55-64 | Male | On medication for 2 to less than 5 years | Caregiver
5/7/2012
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Wife has Huningtons she has been on this drug for three years. At first it helped with the movements. This drug cost $8000 a month which is insane and not worth it in my opionion. Dr does not seem to have any alternatves. Canada has the same drug for less than $400??

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none | 45-54 | Female | On medication for 1 to less than 2 years | Patient
1/15/2012
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I've been on this for 1 year. I'm now taking 25 mg three times daily with great results, less jerking and twitching. I was extremely tired on this, like a zombie, but it worked so well with the involuntary movements. My Dr put me on ritalin to help with the sleepiness and that worked. I did run out of xenazine for 1 week due to pharmacy shipping problem and I was right back to spasms, twitching and having a hard time with mobility. I did have major crying spells/ depression and my doctor put me on celexa. No problems now. I would highly recommend xenazine.Read More Read Less

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Anonymous | 55-64 | Male | On medication for 6 months to less than 1 year | Patient
10/25/2011
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Maintenance dose of 50mg a day helps.

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Anonymous | 55-64 | Male | On medication for less than 1 month | Patient
3/11/2010
Condition: Other
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I have a hard time walking correctly. very sleepy. I don't like this feeling at all

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Anonymous | 55-64 | Male | On medication for 2 to less than 5 years | Patient
3/3/2010
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
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TRESE | 45-54 | Female | On medication for 5 to less than 10 years | Patient
2/16/2010
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

REDUCED CHOREA BIG TIME. NO MENTAL SIDE EFFECTS SUCH AS DEPRESSION ETC. DIAGNOSED WITH HUNTINGTON'S IN 2000. STARTED TAKING DRUG PRIOR TO FDA FULL APRROVAL THROUGH A PROGRAM A XXX DUKE.

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Teddinger | 35-44 | Male | On medication for 1 to less than 2 years | Caregiver
10/17/2009
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Wife 33yrs old. Initial rapid improvement (1-2 months), followed by rapid deterioration(after 1 year)as dosage was raised. Have slowly lowered dosage with no improvement. Have appt in 1 week, looks like he is going to recommend ceasing treatment with it. Symptoms were, decreased voluntary muscle control, increased involuntary movements and heavy sweating.

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stoilk | 55-64 | Female | On medication for 1 to 6 months | Caregiver
5/31/2009
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Male 69 years, severe movements, taking zyprexa which helped some. Now also on his dose of xenazine, working very well at first. Now he is very tired all the time, no energy. Have cut 1 dose as of yesterday. Doctor appointment in 3 weeks.

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Anonymous | 65-74 | Male | On medication for 1 to 6 months | Caregiver
12/22/2008
Condition: Irregular Involuntary Spasms of Limbs or Facial Muscles with Huntington's Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I have given this to my wife who has Huntingtons for 7 weeks.I have not seen any improvement yet.I have noticed more depression using it.We have a Doctors app. 1/5/09.Maybe he can help.

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