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I was diagnosed in June of 2000 with CLL, and the possible Richters transformation of non Hodgkins Lymphoma by a tumor the size of a tennis ball at the junction of the cecum and Illyum in my intestines. A surgery removed the tumor that had not metastasized and was followed with 8 treatments of CHOP chemotherapy. I lived a painfree and normal life for 12 years follwing treatment. I took a physic...

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Attacus Atlas | 55-64 | Male | On medication for 1 to 6 months | Patient
11/20/2012
Condition: Progressive Chronic Lymphocytic Leukemia
Overall rating 5.0
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I was diagnosed in June of 2000 with CLL, and the possible Richters transformation of non Hodgkins Lymphoma by a tumor the size of a tennis ball at the junction of the cecum and Illyum in my intestines. A surgery removed the tumor that had not metastasized and was followed with 8 treatments of CHOP chemotherapy. I lived a painfree and normal life for 12 years follwing treatment. I took a physical this past February and received a call from the Dr. asking me to come in and begin a series of tests to determine a relapse of CLL. (Chronic Lymphocytic Leukemia). My initial symptoms involved chronic fatigue, mild night sweats to the neck and chest, and swelling of the lymph nodes on my neck and under my arms. My initial WBC count was 75K. A bone marrow biopsy and FISH flow analysis revealed the following markers: DL-38, ZAP70, P-17 deletion. My decision to leave the well meaning strip mall oncology group rushing me towards treatment with FCR caused me to step back and seek a second opinion. This led me to return to Sharp Memorial Oncology and Dr. Rice who completed her clinical residency at UCSD and Dr. Kips. I met with Dr. Michael Choi who took the time to explain my CLL and associated markers completely, and worked diligently to enroll me in a clinical trial of Irbrutinib vs Ofatumumab. I was chosen to receive Ofatumumab. Started the treatment early Ocotber. Slight initial reaction (itchy skin, achy, flu like symptoms) stopped the infusion, (I have an infusion port)increased benadryll infusion and then resumed. Overall I have tolerated the last 5 treatments very well. My WBC was 145K at the first treatment, my WBS is now 20K! My platelet and neutrophyll counts are climbing, and I am very encouraged by the response and results of the treatment with Ofatumumab. I am also so impressed with the Doctors and staff at UCSD Moores cancer center. I will post future progress on this web site. I highly recommend this treatment for relapsed CLL patients. DRHRead More Read Less

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