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    Read user comments about the side effects, benefits, and effectiveness of Hizentra subcutaneous.

    Overall User Ratings

    54 Total User Reviews

    User Reviews

    1-5 of 39 Next»
    Condition: Primary Immune Deficiency Disorder
    11/14/2019 8:02:23 PM

    Reviewer: Ohio Girl, 55-64 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 2

    Ease of Use

    Current Rating: 2

    Satisfaction

    Current Rating: 2

    Comment:
    The side effects have been horrible--headache, nausea, lightheaded, loss of appetite, diarrhea and significant joint pain. Also, the infusion sites (2) have been painful, red , swollen, and bruised. I have stopped using.

    Condition: Primary Immune Deficiency Disorder
    2/7/2019 6:53:16 PM

    Reviewer: Helen, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I have been infusing 10g/week Hizentra for 2 years now and it has worked wonders. I highly recommend: drinking two quarts electrolyte water day before, day of and day after infusion to minimize side effects. (I use Ultima) I also use Benadryl (1 capsule) as pre treatment to minimize side effects.

    Condition: Primary Immune Deficiency Disorder
    8/12/2018 11:52:45 PM

    Reviewer: Nic, 35-44 on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 1

    Comment:
    I have not been sick. I do subQ weekly of 9 grams. The side effects are terrible. My legs feel like jello, headaches, bottom eye lids are red, I stay hungry, bedrest fatigue still, brain fog. I have been using it for 5 weeks. I am not fond of needles. So it is bothersome for me. I stay swollen for days from the sites and itch at the sites.

    Condition: Primary Immune Deficiency Disorder
    8/10/2017 3:13:20 PM

    Reviewer: 45-54 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 2

    Comment:
    I have had weekly infusions with Hizentra since May. I have not had any infections, but the side effects have been horrible--headache, nausea, lightheaded, loss of appetite, diarrhea and significant joint pain. Also, the infusion sites (2) have been painful--red, swollen, and bruised. I have stopped using it and my doctor is recommending a different product.

    Condition: Primary Immune Deficiency Disorder
    8/6/2017 1:59:47 PM

    Reviewer: liljeanne, 35-44 on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 4

    Comment:
    I had to have the slowest infusion rate possible due to nausea vomiting fatigue. And it is not the most comfortable of treatments no matter how long or thin the needle subQ is still subQ. BUT that being said my immune system has responded beautifully to the Hizentra!!! I have NOT been in the hospital for an infection since I started it. Normal oral antibiotics work now. I feel better in gener ... Show Full Comment

    1-5 of 39 Next»

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