DO not listen to the other posters here who are most likely making stuff up trying to scare you. My sister is a physician and she went over all the side effects with me. The only real concern is a rash since Prolia does NOT go through the kidney or liver like all the other drugs. This is by FAR the SAFEST osteoporosis medicine. And its the easiest too. When looking at the side effects also look at...
Pain worse than I've ever had, skin aged and leathery, constipation and can't breathe. I'm in worse shape now than before I had prolia--will NOT take any more. Stomach and digestion problems all the time, can't sleep. 6 months of hell for me. Cholesterol went way up. RA got worse--Dr. said it would help it--a lie! Dr. treated me as a guinea pig--used a sample she had in office--did NOT charge...
Jo-Ann | 75 or over | Female | On medication for 2 to less than 5 years | Patient
3/2/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
According to my doctor's medical assistant, I started this subcutaneous medication in December of 2020, every 6 months. My endocrinologist insisted it would keep my bones from deteriorating (although it wouldn't increase my bone mass). These past 2-1/2 years I was wondering why I'm always feeling exhausted and my IBS/Colitis is exacerbated.
Without thinking, I just had another injection earlier this week and immediately following, I had an intestinal flare-up. My joints are also incredibly sore and I thought this is due to not exercising regularly since the pandemic (part of that might be true).
My doctor, who I really like allot, dismissed my issues saying it's probably "something else" since I've had these issues for a few years. After reading all of the testimonials, I've decided to completely stop this medication, take Calcium and D3 and start my exercise regiment. It's just a matter of putting "two and two" together!Read More Read Less
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Ginny | 75 or over | Female | On medication for 5 to less than 10 years | Patient
2/24/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Had two back teeth two dentists said had severe bone loss…my problem was to pull, wait or stop Prolia or all after 7 yrs. I had my last shot 11/4 but two weeks ago I had to have them both pulled before condition got worse….$2,000 later they are gone. Today no more shots. I am 75.
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Sue | 65-74 | Female | On medication for 1 to 6 months | Patient
2/15/2023
Condition: Osteoporosis
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
I received the injection in July. Since then, my joints have hurt worse than ever. I had a spinal fusion in 2015 and now my back hurts as well as my knees, my thumb joints burn (never had this before), and my legs hurt so bad. I noticed spider veins I had before are painful now. All of this in six months time. I will NEVER take this again. I will just chance it with the osteoporosis!
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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
2/12/2023
Condition: Osteoporosis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
I've only had 2 injections so we don't know if it is working except that I have always had unexplained hypercalcemia that I no longer have so it is pulling the calcium from my blood and hopefully depositing in my bones.
I am here because I ahve seen NOTHING about freaky hair/nail side effects. The week after my injections, I have lost a lot more hair than usual. Since my hair is down to my waist, I know that for sure as it clogs the drain. But, that is followed by a ridiculous amount of growth. I had my roots done, I should add am nearly 100% gray so very noticeable, and my hair grew 2 inches in 7 weeks. My nails also grow like crazy but at the 10 week mark when the area growing from the base in the week after the injection, gets to the ends, they split and crack like crazy. This has been observed my my nail tech and colorist who know me well. Has anyone else had this experience? I am hoping to find a supplement that could help alleviate this. Read More Read Less
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Braveheart | 65-74 | Female | On medication for 1 to 6 months | Patient
I took Femara for 10 years for breast cancer and went from osteopenia to osteoporosis during the 10 years after that. During that time my oncologist pushed these drugs on me for my osteoporosis and I resisted due to the side effects. They were discounted as being very rare. I have severe back problems that required an MRI which showed a possible small fracture. The spinal surgeon suggested going on these drugs - an injectable one since I have a lot of stomach problems. So I did and got Prolia. One of the worst mistakes of my life. Two days later I got jaw pain and now have constant eye twitching (it has been reported as a side effect) plus more joint pain - as if I need more with all the pain I have with my back problems. I have only had one injection but will not be getting another. I am keeping a notebook of my side effects with dates etc.as I see a class action lawsuit in the future with the drug. For those considering this drug - I would advise to avoid at all cost.Read More Read Less
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Maddy | 75 or over | Female | On medication for 2 to less than 5 years | Caregiver
1/16/2023
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
My mother was prescribe Prolia she took a total of 4 shots. She got a terrible itchy rash which got worse with each injection. Steroid creams did nothing for rash. She did every allergy test, it was not an allergy. She lost 40% of her hair. It did ZERO for her bone density. When she stopped the Prolia rash went away in 6 months, her hair has grown back. But she is left with terrible pain and weakness in her legs, and now has problems with veins in legs, really monstrous issue and her veins were fine prior to Prolia. She needed dental work because of weakening of jaw. After being OFF Prolia for 2 years her bone density is UP significantly. Take MCHA type calcium (no other kind), Magnesium glycinate, D and Super K by Life Extension and NAC and collagen peptides. You must also do weight bearing exercise. She will not be taking any more Prolia. It is a repurposed cancer med. I will be complaining to FDA about unacceptable side effect profile. Not to mention it did ZERO for her bone mineral density. Do not take Prolia. Read More Read Less
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Starcatty | 75 or over | Female | On medication for less than 1 month | Patient
1/7/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
My doctor suggested this drug, but after reading the reviews, I will not take it. The doctor said not to read the reviews as they are not indicative of the real side effects and the people who post might just be complainers. I disagree.......these are people who are just expressing what they went through and they have no reason to lie or exaggerate.
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D. Just had .y | 55-64 | Female | On medication for 1 to less than 2 years | Patient
12/27/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
On my 3rd Prolia injection and have experienced only minor muscle pain and occasional headache. Everything has a side effect, Osteoporosis causes fractures, I will take my chances with Prolia it has been shown to improve bone density.
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Mary | 75 or over | Female | On medication for 2 to less than 5 years | Patient
12/4/2022
Condition: Osteoporosis
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
I have been on this for 2 years and wish I never started. I am in more pain than ever. I have had 2 strokes while on this. I was not told about the problems to look for. Doctors make it sound wonderful. This medicine should never be taken. I fainted
and went to emergency. All tests showed nothing. Just take your calcium and D3. It's safer and stay way far away from prolia. Should never be on the market.
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Carol | 65-74 | Female | On medication for 1 to less than 2 years | Patient
12/3/2022
Condition: Other
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
I have osteopenia and should not have been put on this medication. It hasn’t changed my numbers much. My side effects are stomach and constipation, but I don’t know for sure. My biggest complaint is the problem with getting off it. If you don’t take some other biphosphonate most people will experience rapid bone loss for the next two years, such that one returns to pre baseline levels. Why take a drug that increases bone density only to end up losing more bone than you Started with! And there are serious side effects! I’m sorry for all the terrible things you are all going through! Please be sure to go on a different biphosphonate, if you can, when getting off prolia to avoid the rebound effect (bone loss and vertebral fractures)Read More Read Less
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Anonymous | 75 or over | Female | On medication for 1 to less than 2 years | Patient
10/30/2022
Condition: Osteoporosis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
This month, I am supposed to get my 4th shot. About two month before every shot, I experience unusual soft tissue inflammation. First my gums, this time it’s my feet. Unexplained pain and swelling, quite debilitating. Also very stiff back after sitting, back pain and in particular right side pelvic and hip pain. Will get off this medication, even though I may have bone loss. Hopefully a transition with Reclast injection will help.
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Margaret | 65-74 | Female | On medication for 1 to 6 months | Patient
10/24/2022
Condition: Osteoporosis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
I suffered a lot with joint, bone, jaw pain plus more. I wouldn't recommend this to anyone. Only h a d one shot, that was enough.
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Anonymous | 75 or over | Female | Patient
9/30/2022
Condition: Osteoporosis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
I was told to take prolia for my due to osteoporosis. I have a long history of being allergic to medicine and foods which my doctors know. I was all set to take this drug . I did read these reviews. Thank you Thank you. You have saved me from a terrible fate. I have a dear friend who took it and is suffering. This drug is not good for 75 percent of people who take it!!!!! Come on FDA do the right thing and take it off the market.
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Lorraine | Female | On medication for 1 to 6 months | Patient
9/6/2022
Condition: Osteoporosis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
Only had one injection in April 2022. I'm still suffering from swollen fingers and hands. Shoulder, elbow and wrist pain. It's a deep bone pain like I've never felt before. I have a messed up spine so I'm used to pain. I've had 3 injections of steroid and pain meds in my gangin nerves to calm it down. It gave me some relief. I'm told by my Doctors it should go away when life of Prolia wears off! Ugggg I have until October 16th. Ugggg...no more I used to feel good!!!! It need to be off the market!!!! Read More Read Less
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Prolia | 65-74 | Female | Patient
8/16/2022
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
I am just short of osteoporosis (-1.75) so I took it after it just came out when there were no bad reviews. However, it was a delayed reaction of +/-2.5 wks and then I was hit with what felt like rheumatoid arthritis or very bad flu without any respiratory symptoms. I took OTC ibuprofen and turmeric w black pepper. Worked great for 7-10 hrs, then the severe symptoms reappeared. It took another 2.5 wks to get back to vibrant normal. Then I took the follow up injection almost 7 mos later w exactly the same time and response. NOT worth it. Stick w weight bearing exercises, homeopathic, and just be careful. Read More Read Less
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Mary | 75 or over | Female | On medication for 2 to less than 5 years | Patient
7/19/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Works very well for me. On Prolia for over 4 years with good results per my Dexa scan. Luckily, I have experienced no side effects. My only complaints is my hi copay of $248.
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Nelda Camper | 65-74 | Female | On medication for 1 to 6 months | Patient
7/18/2022
Condition: Osteoporosis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
I am a 74 year old Caucasia female. I was diagnosed with severe osteoporosis when I was 46 years old. I have tried several drugs for this condition, but nothing has increased the bone density.I am very active for my age; I love to walk and swim, and I maintain a healthy diet. I religiously take vitamins and calcium supplements. My physician suggested Prolia. DO NOT TAKE THIS DRUG! I regret not doing more research before I had the injection. The same day I had the injection a knot appeared on my right wrist. It constantly aches. Also, believe it or not, a mass of what looks like bone formed on the top of my left foot. When I swim my left foot does not flex properly and I have spasms. My left femur and hip also ache. I felt so much better before I took Prolia. I am hoping these side effects will go away. Read More Read Less
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Anonymous | 45-54 | Female | On medication for less than 1 month | Patient
7/7/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
Had my first and only shot July 1, 2022. Two days after shot I had sever pain in my lower back and right jaw. Next day the worst pain of my life in my feet and legs, lower back, and right shoulder. Spoke with my doctor on Wednesday because the pain was unbearable. She told me it was normal and would last about a week. Tomorrow will be a week and I'm still in pain. Due to the severity of this pain I will NOT take any more of it.
I can not come up with a way to relay to you in writing how horrible this week has been.Read More Read Less
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ALYCIA | 65-74 | Female | On medication for 5 to less than 10 years | Patient
6/16/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
HE PROLIA FOLKS ARE USELESS.I have taken Prolia for more than 6 yrs without any issues. I was given the drug by IM by mistake. Does anyone know if the drug will work or will there be side effect that I didn't have before. THE PROLIA FOLKS ARE USELESS.
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Jacquelyn Poswell | 75 or over | Female | On medication for 10 years or more | Patient
6/14/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
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