I have now been on the medication for 6 months. I was having several complex-partials and at least one grand mal every month. I am no longer having grand mals, and my cp's are slowing down. I have tried SO many of the drugs, and this is the one that has really finally kicked in and helped!!
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I just started this medication a week and a half ago for juvenile myoclonic epilepsy. Its an adjunct to Lyrica and Vimpat. I am SO tired! This med makes me very sleepy and I am only at 10mg. I have to increase in the next few weeks to 20mg. I'm hoping the side effects go away, because the only true complaint I have is that I feel like I can't function.
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turtle | 13-18 | Male | On medication for less than 1 month | Caregiver
Hve been on this medication for 4 weeks. This medication is very effective against drop attacks. My son (Lennox-Gastaut syndrome) went from 10-15 drop attacks a day to none or 1-2 drop attacks on a bad day. He still has other types of seizure with this medication but looks like it slow down. He does experience irritation outburst due to tireness when on this medication for the first 3 weeks but the side efects gradually get better. Considering he had grand- mal seizures on a 2-week basis to no grand-mal seizures after 4 weeks on this medication, it's a wonder drug for us. However, yesterday he has an episode (crying frantically, head shaken, muscle cramping, temperature) which seems like he may have a grand-mal seizure coming so I give him his medications right away (he uses Trileptal, Keppra & Zonizamide together with Onfi), but he still crying so I put wet cold towels on his neck and when his neck get cool (the temperature ease out) then he's back to normal. I never can abort a grand-mal seizure before so I still like this medication.Read More Read Less
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LoMom | 13-18 | Female | On medication for 1 to less than 2 years | Caregiver
This has been wonderful for my 17 yr old daughter with LGS. Went from 20+ tonic seizures daily to 4 in last year. Still have the one or two absence seizures as day but that is manageable!!
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