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3.8 Overall Rating

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Ease of Use

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Most voted positive review

66 People found this comment helpful

The experience I have had with taking this drug has given me back parts of my life that I thought were lost forever. I am able to do the simple things with ease such as getting out of bed. In taking Remicade I feel like my life has been given back to me again.

Most voted negative review

6 People found this comment helpful

I have not started treatment yet, but I had to answer the questions to get my concerns posted. SORRY! I cheated. I have read the reviews on the Web MD site associated with psoriatic arthritis and to be honest it is a little frightening. I am scheduled to begin treatment on remicade Aug. 6th. The 6 reviews I read commented that they were in more pain and the psoriasis was much worse after tre...

Shared reviews and ratings

Cathy | 45-54 | Female | On medication for 5 to less than 10 years | Patient
12/30/2023
Condition: Severe Type of Inflammatory Bowel Disease-Crohn's Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was on remicade for years and in remission and have finally got my life back. I would highly recommend this drug. Then my insurance company switched me to reflexis. Only to go back to having crohn’s flares again. Worst mistake ever! Switch insurance companies if you have too.

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Lindell Stokes | 55-64 | Female | On medication for 1 to less than 2 years | Patient
7/22/2023
Condition: Crohn's Disease
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

This medicine caused me to have fungus infection and mold it lowered my immunity so low that I could not fight off anything. I had parasite problems, this medicine lowered my resistance and they multiplied profusely. It has been 10 years, and I am still seeing black mold . It is a dangerous drug, it makes a lot of money for the company,and doctors. I DO NOT RECOMMEND THIS DRUG FOR ANYONE. I am very sorry for those who have suffered.

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Cesar | Male | On medication for less than 1 month | Patient
7/18/2023
Condition: Severe Ulcerative Colitis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

My 16 years old son was given Remicade for treatment of his Ulcerative Colitis by his Gastroenterologist. Unfortunately, after only his 1st induction dose, he suffered an allergic reaction that almost took him from us, with the following symptoms: headache, difficulty breathing, pain in his upper back, pain in his lungs, lungs felt like they were burning, lightheadedness, blurry/ fuzzy vision, numbness in his left arm, pain in his right leg, cold sweats, and pain in his abdomen. I'm glad that he was at the infusion center at that moment, and I was beside him because the only thing that I could hear was a whisper saying " I can't breathe" before he staring passing out, I was horrified, this Med might work for someone out there, but we are done with it.Read More Read Less

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Maggiemom | 65-74 | Male | On medication for 6 months to less than 1 year | Caregiver
1/28/2023
Condition: Rheumatoid Arthritis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Husband died from lymphoma after one year of remicade infusions. It caused the lymphoma and he could not breathe.

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SadWife | 7-12 | Male | Caregiver
5/14/2022
Condition: Crohn's Disease Maintenance of Remission
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

Remicade killed my husband! He didn't have an allergic reaction, he was fine until he was given his third IV dose and a day or two later his organs started to fail. He had Crohn's disease and he was told that this med would help him. Next thing we know we're rushing him to the hospital, they check him out and say they aren't equipped to handle what is happening to him. They had to airlift him to Seattle to Harborview then to Virginia Mason. They couldn't find anything that would have caused this, the only thing that was different was the Remicade. My husband had been intubated, trying to keep him alive, but after a few days, he died. 40 years together and he was gone and my heart is broken for the rest of my life, as are the hearts of the rest of our family. He was uncomfortable with his Crohn's, but nothing worth taking a drug that would kill him. This medicine is too dangerous for anyone to take, please be careful!Read More Read Less

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LPW | 65-74 | Female | On medication for 2 to less than 5 years | Patient
5/13/2021
Condition: Crohn's Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

After I failed on Entyvio, my gastro put me on Remicade. Two years later, Cleveland Clinic switched their Remicade patients to the bio similar, Renflexis. In the last year, after one infusion, I left the session extremely dizzy. At the next few infusions, blood pressure would initially be close to normal, but slowly escalate to as much as 180/110 by the end of the drip. And I began developing plaques on my forearm, plus itchy crusting on my scalp. As a patient with no symptoms except a presenting afternoon-evening low-grade fever and no diarrhea, I began to wonder why this mild case was being treated with a very powerful drug that causes so many side effects. I also read a couple studies that suggested that in seniors, sometimes auto-immune disease symptoms lessen — or even stop. So finally, after a very clean gut per the colonoscopy camera, my GI has let me stop. We're doing quarterly calprotectin fecal studies, and the colonoscopy will be annual instead of every two years. So far, so good. I've also lost ten pounds after stopping Renflexis. All in all, sign me much happier.Read More Read Less

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Anonymous | 75 or over | Male | On medication for 2 to less than 5 years | Patient
3/24/2020
Condition: Severe Ulcerative Colitis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Tried several other drugs without success. Remicade generally keeps the colitis in check, with occasional minor flares. No side effects after several years of use (every 8 weeks). The time needed for trips to an infusion center can be a hassle, but it's worth it. Some worry about immune supression, especially in times of COVID-19. Am consulting with doc about this.

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Anonymous | 55-64 | On medication for 1 to less than 2 years | Patient
1/10/2019
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I am 57 and I have had RA for three years.I had to stop work, cant sleep and I was having flare ups every other day. I couldn't bath or brush my teeth. I was taking Methotrexate,it helps in the beginning, but after awhile, it was no help. I was crying like a baby. Pain all over my body.My doctor was able to convince me to try it, thank God I listened.I was scared of the side effects Though I still have pain, but not like before. I have infusion every 6 weeks, methotrexate once a week. I am also taking various vitamins including folic acid, fresh turmeric and capsule , ginger, aloe Vera, fresh lime juice and exercise moderately.I have to fight this.Read More Read Less

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Anonymous | 55-64 | Male | On medication for 10 years or more | Patient
11/28/2018
Condition: Rheumatoid Arthritis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Developed RA in 1993 and for a some years progressed through various simple over-the-counter drugs like Ibuprofen and early prescription drugs like Cortisone tablets. Eventually in the late 90s I was on Methotrexate (MTX) once a week with accompanying folic acid tablets. But in the early 2000s the MTX's effectiveness couldn't keep up with the overall worsening of my RA, so my rheumatologist put me on Remicade (with continued weekly MTX). Wow! The difference after my first infusion was like night and day. Additionally, my rheumatologist was one of the early testing physicians in Germany for Remicade, and he as many other rheumatologists here, determined that routine infusions should be administered when a patient's RA symptoms tell you so, and not simply the typically prescribed every 4 to 6 weeks. He's had just a few patients who've needed an infusion only once or twice a year, some who've needed one every 3 to 4 months, some, others every 2 to 3 months, and only some who require and infusion 4 to 6 weeks. The practice is not to excessively flood the body and only infuse when needed. I typically need an infusion every 3 to 4 months. Due to scheduling and other responsibilities I've gone 6 months and paid with pain that is quickly relieved with a few hours of intravenous Remicade. I have also been a Type 1 diabetic since 1974, and the mix of auto-immune deficiencies like diabetes and RA do not make good company in an aging person. But after over 15 years on Remicade, it is still my savior that keeps me productive at my job. My new rheumatologist would like me to switch to the newer oral RA drugs, and I'm highly skeptical. I might try it, maybe not. But like the saying goes: If it's not broken, don't fix it.Read More Read Less

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Dragonlady | 65-74 | On medication for 5 to less than 10 years | Patient
7/12/2018
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Diagnosed with RA 9 years ago, the same month I retired! Started out in a wheelchair, started on methotrexate, no relief. Moved on to Remicade 4 vials every 6 wks. I could walk, brush my teeth, take a shower, etc. I could feel it working as it flowed through my system. It has been 8 yrs now and I'm at 6 vials every 5 weeks but the effects end now at about 7-10 days after infusion! Had blood work done to determine if I have antibodies to Remicade. Afraid I may have to switch to heaven knows what. Have had a bad flare last month, hands, feet, knees, shoulders, wrists have been miserable. I pray for good results and pain relief for all RA patients!Read More Read Less

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pastagirl | 75 or over | On medication for 10 years or more | Patient
6/7/2018
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with RA 10 yrs ago. But I was in denial for several years before that. I went to USC in Irvine for a second opinion and met Dr. Andrews, the kindest and most caring doctor I have ever met. He prescribed 300mg. of Remicade to be given every 8 weeks. He also directed that a small dose of Benadryl be administered before the infusion. Very important.....so that you do not have a reaction! Remicade worked like magic for 10 years. Unfortunately it isn't working as well now. I just spent the day researching alternative meds. and it is frightening to see all the bad reactions to other drugs. One thing I noticed on reviews of Remicade is that most people that had reactions likely weren't given something like Benadryl or Claritin before infusion. My opinion, but I think it may have helped me to not have a reaction......my opinion. So now I have to make the decision on which med I should go for. Oddly, my new doctor (Dr. Andrews went to Australia to practice with his son) is leaving it up to me......like I should know how to treat myself!Read More Read Less

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Jllo97 | 35-44 | Female | Patient
6/2/2018
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Been using this for a year and a half for RA. I have failed 5 other biological and Rem has worked very well for me. I’m certainly not perfect, but I can go about my daily activities again, unlike the 5 years prior to this treatment. Everyone’s body reacts differently to any med, but this one has been a miracle for me. Since it’s too expensive to get in the office, my rheum has arranged an order for a nurse to administer it in Home.

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
7/15/2017
Condition: Rheumatoid Arthritis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Monthly infusions worked great but developed an allergy. No other medications have worked as well.

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Mary F | 55-64 | Female | On medication for 1 to 6 months | Patient
7/11/2017
Condition: Severe Ulcerative Colitis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

An infusion every 8 weeks...hopefully on my way to remission. A true life saver.

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Sheila | 45-54 | Female | On medication for 1 to 6 months | Patient
3/31/2017
Condition: Rheumatoid Arthritis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I am only on my 4th dose and the only draw back that I have seen is weight gain and shortness of breath witch I am relating to my weight gain!! I have had no flare ups what so ever!! Overall I am happy so far!!

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Amzel | 35-44 | On medication for 1 to 6 months | Patient
3/11/2017
Condition: Plaque Psoriasis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Remicade suppressed my psoriasis immediately. HOWEVER, after the 4th treatment my liver enzmyes sky rocketted!! I immediately stopped the medication and 3 months later got my enzymes back to normal. About a month later I started losing my hair, red palms, pale nails, anxiety, heart palpitations, and severe fatigue, and arthritis. I never had a bad reaction to any of the biologics except Remicade. I believe now I have some liver dysfunction and I pray I can reverse this! When I researched Remicade and other testimonials I read many people develope othe autoimmune diseases and liver disease. It may not develope right away so it never gets added to the Remicade warnings portion or tallied up to how many people have bad reactions. All I had was psoriasis prior to Remicade and now I feel like I'm slowly dying. You can treat your disease with food. I kicked my psoriasis back by eating more alkaline, taking milk thistle, and juicing with chlorophyll. I wish I would have known this years ago. Now, I'm trying to treat the other symptoms that Remicade has brought on and I pray I can reverse it! Please..... with all my heart do not take it! Try the natural way. It took me about a month but then my psoriasis went away. Look up Jason Vale, I started with his regimens. Good luck and God Bless!Read More Read Less

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Anonymous | 45-54 | On medication for 10 years or more | Patient
2/28/2017
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have had rheumatoid arthritis for almost 35 years now. I have taken a lot of different medicines but Remicade has been the best one for me. Never had a problem with it until last year. I was getting my infusions every 7 weeks for the last 10 years. I felt like superwoman until I came down with disseminated histoplasmosis. Even though I nearly died from that fungal infection, I would go back on Remicade in a heartbeat if my Doctors would let me. I really miss it and I worry about my RA getting worse without it.Read More Read Less

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Nancy | 65-74 | Female | On medication for 1 to 6 months | Patient
11/18/2016
Condition: Psoriasis associated with Arthritis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I have had only 3 infusions. After first - no side effects. After second, 4 days later I felt like I had the flu, fever of 100 lasted for days, aching back, could not sleep. After third infusion, I got sick about 4 hours later. Nauseated, light headed, swelling joints, inability to undress and difficulty getting into bed. Fever of 100. I think I am allergic to this drug, but my doctors won't concurr. I want to return to Enbrel, but my insurance won't start to cover until I pay $8K out of pocket. I hate this drug and am fearful I could die. Read More Read Less

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SG | 13-18 | Male | Caregiver
10/14/2016
Condition: Crohn's Disease
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

My son was diagnosed with mild/moderate Crohn's in late 2015. He was 15 at the time of diagnosis and has been on Pentassa since. Tests in Aug of '16 showed worsening of the condition. He received his first Remicade infusion a few days ago. He felt OK after the infusion but missed school the next day due to short term dizziness and prolonged fatigue. He did go to school the 2nd day after infusion. He'll have 2 more infusions in the next 6 weeks and then go on an 8wk cycle. I rated this 3 stars since I have to rate it to post. I cannot say whether it is effective or not at this time. The posts on Remicade and the other meds have been extremely helpful. I hope this is helpful to someone and I hope I plan to revise this (if I can)as my son's treatment progresses. Read More Read Less

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Ronxn | 25-34 | Male | On medication for 1 to 6 months | Patient
9/25/2016
Condition: Crohn's Disease
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

WORST DRUG!!SAVE YOURSELF BY NOT TRYING IT!!HAD SERIOUS LUNG INJURY.

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