Show ratings & reviews for

3.4 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

11 People found this comment helpful

I have had NO side effects. I inject myself before bed, so if there are side effects, I don't notice them. This is the easiest self-injectable I have ever used!

Most voted negative review

2 People found this comment helpful

This drug causes an extreme reaction in my 89 year old mother. Severe pain in her jaw and arms, flushing and heat in the face, dizziness for an hour or more after the shot. She has always had low BP but now even that is unpredictable and can be seriously high on any given day.

Shared reviews and ratings

Babs0099 | 75 or over | Female | On medication for 1 to less than 2 years | Patient
10/3/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I’ve been on Tymlos for one year. Yes throbbing head for <1 hour after a shot. Labs show improvement. But now I’m suddenly low in thyroid. And getting leg pains throughout the day which I had in one leg from old injury. But both?! Endocrinologist said I’m absorbing double—but why after a year? I’m considering stopping it if reducing to alternate nights doesn’t help. I’m

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Elle | 55-64 | Female | On medication for 1 to 6 months | Patient
9/25/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Yes, my dexascan showed dramatic improvement— in only 5 months. HOWEVER— due to severe side effects- stomach issues- I was told to stop. My labs showed a very high alk phos so because I was having such bad problems with my stomach, I was tested for gallbladder issues. All tests for gallbladder were negative. Turns out the high alk phos was coming from bone. Evidently, I am a “super responder” to Tymlos. And due to the very abnormal labs, I’m being switched to another drug, Reclast. Gastritis or bad stomach issues (GERD, stomach pain, gas, belching) is not listed as a common side effect, but I had all of those. Since then, my doctor said she heard of another endocrinologist who had a patient with similar issues. So just throwing it out there to the community. I suffered for months before it dawned on me that it could be related to the Tymlos. Read More Read Less

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Bobbi | 55-64 | Female | On medication for 1 to less than 2 years | Patient
9/13/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with severe Osteoporosis 2 years ago at 58 years old . I then started Tymlos, zero side effects and I gave it to myself every am for 18 months. Had Dexa scan 2 days ago and I am no longer in the severe Osteoporosis range. I was -2.9 I am now -2.1. I went from severe Osteoporosis to Osteopenia. I could not be more pleased with the results of this medicine . My doctor messaged me that I had a SIGNIFICENT IMPROVEMENT , and that my body had an excellent response from the meds.

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Susan | 55-64 | Female | Patient
9/9/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

This medication has been difficult for me. It has coincided with high blood pressure and high heart rates. Then I was put on a low dose of Lispranol for the BP and so I also have episodes of almost passing out low BP after having an injection. I’m scheduled for a bone density scan in December and I’m hoping to be done with these injections. Currently the high heart rate occurs within 20 minutes of an injection and continues for about 2 hours~ making sleep difficult. Has anyone else experienced these issues? I feel like I’m rolling the dice on a daily basis with this medication.Read More Read Less

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mfr204 | 65-74 | Female | On medication for 1 to 6 months | Patient
8/18/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been on the drug four months. I haven't had a bone density yet - it's too soon. However, I have had no problem doing the shots daily in my abdomen and I have had absolutely no side effects. I do the shots at 10 PM - shortly before bed.

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Teacher Maggie | 55-64 | Female | On medication for 1 to 6 months | Patient
4/1/2023
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I've had osteopenia/porosis since my late 20s....long before menopause. I've been on a variety of medications for it. Otherwise I am perfectly healthy and now in my 60s. I have been taking this medication for 2 months. Immediately after injection, my kidneys/lower back start throbbing. I feel a slight headache and a little tired. I have to sit down. So I do the injection right before bed so it doesn't interfere with work in the morning. I also am a person who is consistently dehydrated. I try to drink water after the injection and that seems to help a bit. But now my blood pressure has gone way up. Has anyone else had these symptoms?Read More Read Less

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Lolley | 65-74 | Female | On medication for less than 1 month | Patient
2/27/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have been on Tymlos for 23 days, I have notices sharp pains in my forearms, thighs and calves. Headache but that has since started to fewer. My problems is I am experiencing swelling in my lover abdomen as well as in my upper abdomen, like I have never has before. Has anyone experienced this my taking Tmylos?

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Julie | 55-64 | Female | On medication for 1 to 6 months | Patient
2/18/2023
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

It had started causing sever knee and below the knee bone pain back / spine pain very painful. Extreme fatigue the point I can’t get off the couch- I am 56 - it is Feb I started taking it in December of 21 . And now as of Thursday my general practitioner noticed my blood pressure is only 90/60 She told me to start watching it - normal mine is normal ok !!! It is staying very low. Put in a call to my dr that prescribed it and have not heard back? Not a good experience so far . Talked to another lady that had the same issues as me ?? So not sure if I will continue it Read More Read Less

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Colleen | 65-74 | Female | On medication for 1 to 6 months | Patient
10/20/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have never been an athletic type woman however I was very active physically, even more since my retirement in 2014. We have a few acres of woods & field that we try to keep naturalized & have a continual battle against noxious weeds. One year ago this month (10-2022) we were marking spots of poison ivy & poke weed that would need attention in the spring & not paying attention I tripped & fell face first on the hard ground. As the shock wore off the pain set in, worse in my back & legs and I couldn’t walk without help & screaming pain. Long story short, after many doctors & evaluations we were told that I had fractured 3 vertebrae but had severe osteoporosis & the spinal fusion surgery couldn’t be done as my bones were too porous to hold the hardware. I needed to build bone and be reevaluated. The plan was start physical therapy and a bone building medication. Appts were made & I began PT and the insurance process for Tymlos got started. Not long into PT the therapist did something called “passive traction” meaning he pulled extremely hard on my leg causing a new & wicked pain which a trip to urgent care the next day confirmed I now had a broken pelvis. When I started Tymlos my rheumatologist said it would help that fracture heal; by week #4 of Tymlos the pain from the pelvic fracture was almost gone. Impressive. If it is building bone that well I’ll say mission accomplished. I have had no side affects at all which prompted me to call my pharmacy to make sure I wasn’t getting a placebo. I’m still early in my Tymlos journey, 4 months, but with all of this said, I am optimistic and hope others can feel optimism as well :)Read More Read Less

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Janet Doak | 55-64 | Female | On medication for 2 to less than 5 years | Patient
9/14/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

Financial information for persons on this medication to be aware of: I would never have been able to afford Tymlos without co-pay assistance arranged by my physician. My insurance billed me over $2,900 with the explanation that the co-pay assistance funds had been exhausted on a tymlos prescription in January, 2022. I was shocked and would have stopped this medication if I had known that I would be responsible for this cost that I, and most people are unable to afford out of pocket. I’m sure that my physician would have helped me find another medication alternative, had she known this. I will not go on tymlos again in 2 years, as discussed with my physician. Sadly, I will need to find another alternative to Tymlos that is more affordable.Read More Read Less

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christy | 35-44 | Female | On medication for 1 to 6 months | Patient
8/11/2022
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

its only been a few weeks since i started injecting Tymlos. However, i've gained weight in my belly where you give yourself the injection. i rotate sides, i haven't had pain. But i've noticed just in my belly, that it looks like i'm pregnant which i'm not. no matter how much i work out, the belly is the only area not changing. I keep a fairly healthy diet, but i've never had a change like this. Tymlos is the only new thing i've had. i found on inspire.com that others have weight gain in their in their stomach's as well. not sure if this new "fat" will go away if i end up dc'ing the injection. Read More Read Less

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Dawn | 75 or over | Female | On medication for less than 1 month | Patient
7/10/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have just begun taking Tymlos, but an challenged because of the location they suggest for the injection. After gaining 75 lbs while being pregnant with triplets, I had to have surgery to repair torn stomach muscles and remove excess skin. Now as an 87lb women who works out regularly, my small stomach is very muscular but covered with scar tissue and stretch marks. Is there an alternative location where I can inject the Tymlos?

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So far so good | 65-74 | Female | On medication for 1 to 6 months | Patient
6/28/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been injecting Tymlos for a month and have not experienced any side effects other than a headache in the morning which dissipated after about 30 minutes. I inject it at night 30 minutes before bed. My habits of regular exercise, daily stretches and drinking lots of water may help deter other side effects. The daily injection takes a little getting used to but it’s a minor and temporary discomfort. So far, so good.

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Vivien | 75 or over | Female | On medication for 6 months to less than 1 year | Patient
4/14/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been on Tymlos for only 7 months so far. It does make my heart rate go up to about 90 to 93 beats per minute for the first hour post injection but gradually comes down to about 68. I do get more tired during the day but that could also be the beta blocker I was put on just before taking Tymlos. My DEXA scan isn't for 2 months so I have no idea if it is helping. The plus so far is that the MRONJ ( medication related osteonecrosis of the jaw) I developed from Reclast and again with Prolia has cleared up . The oral surgeon at Penn Medicine said it is also used as a treatment for MRONJ. So that is a huge plus. Read More Read Less

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
1/19/2022
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been taking Tymlos for about 3 months for osteoporosis in my spine. When I first started, I had heart palpitations and pressure headaches which lasted about 45 minutes post injection. Those side effects have gradually resolved. Pushing a lot of water and staying well hydrated I think helped. About a month into the injections, I also developed strange sensations in my distal extremities (mostly lower legs and feet). The sensations are brief, intermittent, pulsating and feel like tiny rubber bands being flicked under my skin. They are not painful just annoying and resolve as quickly as they come. I only notice them when I am still like when I am driving or lying in bed. I have no idea what they are and my Doctor was perplexed. I hope they are my bones growing/building but I must admit they freak me out sometimes. Wondering if anyone else has felt them or something similar ? I am looking forward to the day I can repeat my bone scan and Hopefully see much improvement in my BMD. Read More Read Less

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Che | 45-54 | Female | On medication for 2 to less than 5 years | Patient
7/15/2021
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I had some nausea and heart palpitations at different times using the medicine. Periodic "growing" pains felt in the first year. My dexa scores remained the same for the most part and one was a -.1 worse. I was really excited at the possibility of increasing my bone mass but ended up where I started.

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Kristen | 55-64 | Female | On medication for 2 to less than 5 years | Patient
4/27/2021
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with severe osteoporosis in my spine about 4 years ago. Started Tymlos 2 years ago at a -3.5 in spine. After 2 years and tolerating the medication very well I am thrilled to say my t-score has improved to -2.1!! No more osteoporosis and a 15% improvement in bone density. I am very pleased with my results but worked very hard to get tons of calcium in my diet and exercised 5 days a week. Dont give up but you have to work to get good results.

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Terese | 55-64 | Female | On medication for 1 to 6 months | Patient
2/27/2020
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

It’s easy to do but no where on the side effects do I see why I get such a bad chest tightening. However, all side effects only last about an hour so I give myself a shot an hour before bed. Only been doing it for a month so we’ll see.

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Barb | 55-64 | Female | On medication for 1 to 6 months | Patient
2/5/2020
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I do have about a two hour increase in heart rate but find if I hydrate a lot before using, it helps that. Had 2 fractures and was still having microfractures prior to taking. From that I was in a lot of pain but within a month of taking Tymlos, I felt stronger with much less pain, more like my old self again.

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Anonymous | 65-74 | On medication for 6 months to less than 1 year | Patient
1/1/2020
Condition: osteoporosis in postmenopausal woman at high risk for fracture
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

i frill diary often during the day and it makes me sad sometime and I am achey in my joints all the time and i bruise very easily especially my abdomen.

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