These reviews truly helped us make a decision to initiate or not. Note this is a 90yo patient. Waited 8 months before tried Inqovi, diagnosed in May. After diagnosis we read side effect profile and decided nutrition will be out medicine vs. INQOVI. Doctors said nothing herbal or nutrition would help build blood counts but that was not true. simply google. Patient would go about 3 weeks with no transfusion and he was intermediate on diagnosis spectrum. In the fall, transfusions became more frequent, every other week; platelets dropping but ok. In January gave Inqovi a try. Doctor emphasized can always quit. January, first round went ok. Just more tired, more naps; no other side effect. Second round day 3 - chills, weak, could not walk alone, temp. Went to ER and bam. Now we have liver issues, infection - which are par for course. But it has been all down hill since the end of February, now April. So, it rips your levels down. Obviously been off drug since ER admission but the force quit left patient with more harm than good. It just seemed to me that it elevated and irritated anything, comorbidity you had going on in your body. I advise to thoroughly read the package insert WITH your family and perhaps a somewhat knowledgeable medical person. Note the words 'toxicity.' INQOVI caused a lot of things too. Look at the trial section in the PI. And common sense - any drug you only take for 5 days then off 25, is probably going to surely disrupt the body, but it's chemo too, right? The question we asked ourself is, we know what we are dealing with by not taking INQOVI - I'm tired, have labs every week, transfusion here and there; but I am independent, still do things I like, go places, take more naps. On drug, your body may be totally taxed. Little independence, not enjoying life, can't get out of bed on your own, go to bathroom, and taking more naps. So think of consider patient age. I am guessing that effects are just as brutal in a younger person. Read the trials for age. I think my doc really pushed it. I am happy we started with nutrition vs. INQOVI on this journey. these drugs are more toxic than the darn disease you have - in my opinion. And do you really know outcomes? I think on drug mortality rate was lower than if you took the drug. I would not recommend
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