I have Collagenous Colitis and this is the only medicine that has helped besides Prednisone (which I only took for one week). I've been on Budesonide off & on for 5 years. Each time I go off of it the symptoms return.
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10 People found this comment helpful
just started this yesterday for lymphocytic colitis
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Anonomise | Female | Patient
3/24/2024
Condition: Crohn's Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Been on Budesonide for 6 years and have good relief of severe diarrhea caused by microscopic colitis after finding no relief from other meds. Side effects are thin skin, dry mouth and fatigue.
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Thomas R Leddy | 75 or over | Male | On medication for 1 to 6 months | Caregiver
3/13/2024
Condition: Collagenous Colitis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Budesonide worked very well to quiet my microscopic colitis. Caused no obvious systemic side effects, but caused significant thinning of the skin, first on arms, later on legs, a mild “bump” would cause a superficial laceration, and the forearms were terribly bruised with extensive superficial hemorrhages. My legs less so. Stopping, then resuming,the Budesonide, cemented the drug as the culprit.
I am now taking a biologic, admittedly a more toxic medication, but my skin has made a comeback and lacerations upon trivial encounters have stopped. In the past, just a slight trauma to my hands, e.g.reaching for something, resulted in immediate bruising, if not a frank laceration.
I’ve not seen reports of this nature so maybe my experience will comfort others that they are not unuque.Read More Read Less
1
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Marcel | 55-64 | Male | On medication for less than 1 month | Patient
12/17/2023
Condition: Crohn's Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I suffer from Crohns, the steroid work amazing for me. But I do have some side affects. One seems to be elevated blood pressure, and puffy face. My appetite has increased. I started on 3 and will tapper down to 2 then 1 for 30 days.
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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
7/3/2023
Condition: Crohn's Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
I found cortiment worked OK.ro.bring me to remission. It reduced all my inflammatory markers, but, it seams to have effectes my kidneys, since I came off it my renal function has gone away down and my BP had gone up. Hoping this will correct itself in time.
1
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Poopybutt432 | 19-24 | Female | On medication for 1 to 6 months | Caregiver
9/14/2022
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
I am one month in of 3pills a day which will be tapered off over the next two months, 2 pill then one pill. Daily Pain and diarrhea every morning has gone away but my stomach bloating and constipation have definitely worsened. Hoping to see more results in the next two months - like other reviewers mentioned.
I am a bit puffy All over, I think as a side effect but I’m fine and just being kind to myself for trying to heal.
Will update after.
1
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rrg | 55-64 | Female | On medication for less than 1 month | Patient
7/12/2022
Condition: Collagenous Colitis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I have been taking for just 2 weeks. Had polyp removal and hemroidectomy and diarrhea was out of control and inhibited healing. Within 2 days I was better. I am a bit more tired and concerned I’ll have side effects but sticking with this especially since I still have a lot of pain and healing needs to continue.
1
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Anita | 65-74 | Female | On medication for 1 to 6 months | Patient
4/29/2022
Condition: Collagenous Colitis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Worked very well for lympathic colitis. However, finished regimen 3 weeks ago and diahrea returned. Waiting to hear from Dr re.what next
1
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Anonymous | 13-18 | Male | On medication for 1 to 6 months | Patient
3/29/2022
Condition: Crohn's Disease
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
I was diagnosed with Crohn’s disease in December and this is about my 10th medication I’ve been on because absolutely nothing is working for me, and neither has this. If anything it’s been making it worse, not better.
1
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Anonymous | 25-34 | Female | On medication for less than 1 month | Patient
3/17/2022
Condition: Ulcerated Colon
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I started taking this after testing positive for H Pylori. After getting tested because I had extreme diarrhea, I was put on a treatment but the diarrhea never stopped if anything it worsened. Finally got this medicine prescribed and it stopped the diarrhea on the second day. While I’m so grateful for that. I randomly have a hard time breathing and random panic attacks since I started this. I’ve only been on it for 3 days.
1
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three times a day | 65-74 | Male | On medication for less than 1 month | Patient
1/12/2021
Condition: Other
Overall rating 4.0
Effectiveness
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just started
1
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Rosemary | 55-64 | Female | On medication for 1 to 6 months | Patient
12/18/2020
Condition: Other
Overall rating 1.3
Effectiveness
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I was prescibed this medicine for my diahreah. It did not work for me. I have IBS.
2
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Mily | 65-74 | Female | On medication for 1 to 6 months | Patient
12/18/2019
Condition: Other
Overall rating 2.7
Effectiveness
Ease of Use
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side effects tough to take
5
1
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gladysrs | 75 or over | Female | On medication for 6 months to less than 1 year | Patient
5/3/2019
Condition: Ulcerated Colon
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I am taking this medication for about 10 month now. My condition is Ulcerative Colitis. I feel much better now, specially during the last two month.
2
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Anonymous | 65-74 | Male | On medication for less than 1 month | Patient
12/21/2018
Condition: Crohn's Disease
Overall rating 3.7
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My question is I have just started taking this drug and I am curious of how long it took patients to achieve remission.
1
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Martin | 55-64 | On medication for 5 to less than 10 years | Patient
11/20/2017
Condition: Crohn's Disease Maintenance of Remission
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I've been on this drug for 6 years and works perfectly... However I've been very tired and without energy for an extended period x 12 months now and am going to to doctor to find out whether it may be long term use of this drug.
2
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Anonymous | 25-34 | On medication for 1 to 6 months | Patient
8/19/2017
Condition: Ulcerated Colon
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have ulcerative colitis and this is the only medicine that helps!
3
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Happy at Last | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
6/10/2017
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
After a year of constantly running to the toilet and not making it in time, feeling so ill, no appetite, feeling sick and lost 2 stone in weight, the doc finaly referred me to hospital and had colonoscopy. I was diagnosed with microscopic colitis, but still didn't find this out until nearly 3 months later as that was when my appointment to go back to specialist. Meanwhile I got so ill that I got badly dehydrated and only clear liquid was running out of me and was constantly trying to vomit. My husband called for ambulance. Paramedics phoned my gp who then got in touch with hospital specialist who prescribed Budesonide. Miracle drug. Since the first dose, the day after my collapse I have NOT had diarrhea. I finally got my life back after a year of up to 15 to 18 Imodium A DAY, and stuck at home for fear of soiling myself. I have been taking it for 6 months and now beginning to put weight back on. I don't appear to have any side affects as yet, but then I would put up with them rather than be a prisoner to Microscopic Colitis C, and the shear misery that comes with it. Good luck to you all and I hope this helps you. Budesonide is truly my wonder drug.Read More Read Less
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Anonymous | 45-54 | Female | On medication for 2 to less than 5 years | Patient
1/29/2017
Condition: Ulcerated Colon
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I've been taking this for a while now. It has caused skin on my arms to be extremely thin and effects my vision some days. Probably get put back on pentasa.
1
1
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Anonymous | 45-54 | Female | On medication for less than 1 month | Patient
1/20/2017
Condition: Crohn's Disease
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
Not able to tolerate well: trouble breathing, heart racing, extremely tired, blurry vision, dizziness.
2
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beadlady56 | 55-64 | Female | On medication for 1 to 6 months | Patient
11/21/2016
Condition: Crohn's Disease Maintenance of Remission
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I feel great when I am on this drug, but I hate to take 3 large pills in the morning. But I do because they make me feel better.
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