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3.6 Overall Rating

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Most voted positive review

7 People found this comment helpful

My daughter has just been prescribed this drug for infantile spasms. Needless to say my wife and I were FLOORED when we found out the cost on this is 23 THOUSAND DOLLARS a vial and she will need roughly 4-6 vials. That is NOT a typo. TWENTY THREE GRAND.

Most voted negative review

3 People found this comment helpful

Not yet a user but okay with what i have heard with users.

Shared reviews and ratings

bobby08 | 65-74 | Male | On medication for 1 to less than 2 years | Patient
12/26/2013
Condition: Nephrotic Syndrome
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I lived. I had been given six months to live before this treatment. But it was used on me over 60 years ago. One major side effect was and is benign essential tremor. I can barely write my name or feed myself.

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Anonymous | 25-34 | Female | On medication for 1 to 6 months | Caregiver
8/9/2013
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

My child was on ACTH for Infantile Spasms. Decreased the seizures, but not a cure all. He became very swollen from this medication. After 10 vials in 3 months he still was not SF. Again, at the cost of at least $23k a vial, and not a cure-all, it makes it hard to have a good satisfaction rating.

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Ronni61 | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
5/12/2013
Condition: Multiple Sclerosis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I took ACDTH in a trial study in 2005 it worked fine. In 2013 it was given as a med for 3 weeks for MS relapse. It has been a month. I am still bloated, feet and ankle swelling. Have moon face and nausea some days. Not responding to water pills did not seem to help as well as trial study in 05. Not happy to have tried it again and will not try again. Affects were too negative for me. including weight gain hard to fit into shoes from swelling after one month off of the med. Very stressful.

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Anonymous | Female | On medication for less than 1 month | Caregiver
9/22/2011
Condition: Multiple Sclerosis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

Okay, the drug is easier to tolerate than methylprednisolone, the triadional treatment for MS exacerbations. It has a slower absorption rate, so it stays in the bloodstream longer, and the side effects seem to be kinder than either po or IV steroids. But, and this is a *Huge but, the barbarians who make the stuff have priced it so far out of human reach that they've rendered it literally unusable. (This is the end of my rant.)

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dr_samer_elnagar | 35-44 | Male | On medication for 6 months to less than 1 year |
9/16/2011
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

firest use in infantil spasm vgood but after 16 ampul inj the effacacy decreased

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