User Reviews for dapsone oral

Ive have lekocytoclastic vasculitis for 4 years and Ive been on dapsone for nearly 2. It prevents my disease from flaring up, which saves me a lot of pain, and a nice side effect is that it makes me acne free :)

I initially took 50mg a day with no noticeable benefits, after increasing to 100mg there has been an improvement in my vasulitis.

This medication is my miracle drug, as many have probably said before me. I got my DH diagnosis about 5 years after it first appeared. I only had adverse effects in the first few weeks, which included change of sleeping patterns, loss of appetite, muscle weakness and irritability. But after the first few weeks everything was just fine, have been taking it with no problems since then. But recently my health insurance lapsed, and my Dermatologist refused to refill without doing my labs, which is understandable, but ever since I ran out of the medicine I've been having some very strange side-effects, including blood blisters in every finger and toe, all over my palms, blisters larger than grapes that just never stop burning, pins and needles in the affected areas. Constant nausea, no matter what I eat, extreme fatigue. I ended up going to the ER because it was hurting so bad that I could hardly move, they did my labs, and now I just have to wait for my meds to come in, (have to order them every time I need a refill). But my question is whether anyone else has ever had side-effects similar to mine when abruptly stopping the medication? Read More Read Less

I was diagnosed with Wells Syndrome a few months ago and my Dermatologist put me on Dapsone. I take 50mg/day adn after 30 days, I stopped getting lesions. My Dr. said I could try taking 25 mg/day.... after the 4th day I got a new lesion! so I'm back to 50 mg/day. I am a runner, and now that I've been on it for over 2 months I think it is begining to affect my lungs. I NEVER had problems breathing when I run. Today I thought I was going to have to call an ambulance for oxygen... no joke. Think it's from the dapsone?Read More Read Less

mediterean descent enzyme (portugese), experiencing shut down kidneys loss of oxygen to red blood cells.lack of the ability to move hold eyes open or close mouth, can't eat, having dialysis finally giving him zanax and other drugs. In hospital two weeks given blood transfusions.

Still in early stage of treatment (approx. 12 weeks). The blistering was relieved after the first few eeks but a red area remains on the skin. I have had absolutely no side effects from the Dapsone (100mg daily). My doctor says I may need to remain on this drug for a long period of time. I hope to provide future updates of othing but positive expereiences.

I was prescribed too high a dose at first and felt very dizzy. Within the first year of being on it I had my blood tested 5 times. Not fun, but at least I'm healthy.

I developed panniculitis a few years ago. It involved painful large red nodules on my legs that left bruises behind. Each leg in its turn swelled to almost twice its normal size. Prednizone was mostly ineffective and the side effects were awful, so Dapsone seems like a miracle. I am almost symptom free most of the time now with no major side effects except a little anemia. However, I seemed to have developed an anxiety problem over the last year that doesn't appear to be connected with any personal problems. Anxiety isn't listed as a side effect in the paperwork that comes with Dapsone, although I have seen it mentioned a few places on line. I came to this site to see if anyone else mentioned anxiety related to this medication and so far I have not seen it mentioned. I would not give up Dapsone even if the anxiety is related to it, as the side effects for other medications used to treat panniculitus can be far worse. However, I may ask my doctor about cutting back.Read More Read Less

I have Granuloma and Dapsone is the only treatment for this. I've taken the pill on and off for 3 years; the Granuloma will disappear for approximately 4-6 months then return. The Dapsone does work but I usually have to take (3) 100mg pills daily for 4 months. However, I've started having problems with anemia, which is a side effect. My doctors are monitoring this but I might have to quit the drug. My dermotologist is thinking about prescribing the topical instead.

I had chronic itching that started on the tops of my feet and moved to my knees, groin, buttocks, arm pits, lower back, chin, and back of my head. It would wake me up at 2am every night and I could not top itching. After 2 years of diagnosis a Doctor figured out I had Dermititus Herpetiformis by taking a biopsy of some of the blisters. He prescriped Dapsone. It cleared up the itching within 24 hours but made me extremely tired and light headed. I went for an upper GI to confirm if I had Celiac Disease and discovered that my oxygen levels were at 80% versus 95 to 96%. I turned blue in when getting the upper GI. The doctor said that Dapsone takes oxygen out of your blood and recommended I stop taking it. I have been on a strict Gluten free diet for two weeks (the itching has come back but is getting less severe).Read More Read Less

My dr. prescribed dapsone as a last result. For that last 3 years I've had a skin disorder no one could diagnois.On my fore arms and lower legs nodules appeared raised and then darken due to the intense itching. It's been biopsied, uvb light treated, creams and ointments galore....nothing worked. I've been taking dapsone for 3 months. My legs have cleared 90% and my arms 50%. I am very happy and will contiune this med until all is clear.

At first, I was elated about how fast Dapsone worked for my Dermatitis Herpetiformis skin rash. I also went gluten-free. However after just 6 weeks of use, my doctor told me to stop taking the drug because my blood test results were showing that Dapsone was having "toxic effects on my body". My red and white blood cells all dropped to very low levels causing me to become anemic and also my bone marrow is not making my blood properly anymore. I'm scared to think about the rash returning in full force....and some of my former spots/areas on my skin are already starting to inflame and itch again. I have my son's wedding is Sept. and I was really hoping to be healthy and rash free! Read More Read Less

I was diagnosed with derm. herpetiformis in 2003 I have tried to watch my gluten intake which is the best thing to do but when i get a flare up my Dapsone is my life saver I was afraid to take it at first due to all the bad things people say about it but the benefits far far out number the risks! I have had NO side effects going on almost 9 years now! so if your doctor has prescribed it for you DO NOT LISTEN TO ALL THE NEGATIVE THINGS YOU HEAR ABOUT THEM AS LONG AS YOU ARE SUPPORTED BY YOUR DOCTOR WHILE TAKING IT........YOU WILL BE JUST FINE SO TAKE IT!!!!!Read More Read Less

i use it to treat D.H. it is very effective. i've been told to try a gluten free diet, but i would still get the blisters so i take dapsone just about every day, sometimes i forget. and the blister have moved around on where they will pop up on my body from when i was first diagnosed with d.h.

I have been using dapsone for 30 years. It is my miracle drug. I take it for d. h. Wheever a case flares up i can always count on this drug. My mr. itchies have moved around my body in regards to where the symptoms begin to show up. in the beginning they would always start on my butt cheeks and groin area. Then they moved to starting up on my earlobes. They have always, even today been most severe on and behind my knees and on my elbows and under forearm. Presently they tend to start on the tops of my feet. I don't know where I would be without this drug. Probably in a mental hospital.Read More Read Less

I took it for 2 weeks and ended up in the ER. My skin turned bright red as if I had been scalded by boiling water, it itched, burned and hurt.

I have granuloma for 2 years. My doctor suggested I take Dapsone 3 times a day. After 6 weeks I had to stop because my white blood cells dropprd very low.