User Reviews for Fabrazyme intravenous

Yes...getting up at 5:00 a.m. is hard, getting a ride service is OK,thankfully it only takes about 1 hr. to get to the treatment center,spending over 6 hrs. at the hospital getting this treatment in a cancer center in a room with 10-12 people who are all talking and watching T.V. I on the other hand am trying to sleep due to being tired and from the benedril. Yes it is a long day, but because this treatment might extend my life to me IT IS WORTH IT !!!! My children are also on treatment and that is the MOST IMPORTANT THING ABOUT ALL OF THIS !!!! My grandchildren are also affected with this Fabry's Disease. Praying that they come up with a pill form ASAP for there sake !!!! My family has been affected down the generations. In the old, old days they used to lay down in the creeks of cold water to help with the pain in West Virginia. Praising GOD for all the strides that scientist/doctors have made over the recent years. And yes a lot of family members have succumbed to Fabry's Disease over the years. I will be praying for all of you and your families. May GOD'S many blessings be poured upon you !!!! Read More Read Less

this is my first year being treated with Fabrazyme i started in Jan of 2014 since them my treating dr passed away and since i live in an area with not many cases I have to travel close to 2 hours to a genetic Dr but thanks to the drug company Genzyme they set up a place close to my home for treatment at a local hospital. so every other week i get up at 6am for a treatment and the van service i take because i am wheelchair bound takes 2 to 3 hours to get to my appointment at 9 am and my treatment last until 5:30 pm and it takes the van service anther 3 hours to get home. i get home around 8pm long day.if you have family that can drive you do so. Read More Read Less

im not in as much pain now.but before the teatment i was in and out of the hospital due to unbarible pain