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3 People found this comment helpful

Horrifying side effect. I had dysgeusia (severely disgusting taste in my mouth like I was eating something totally rotten) so bad that even though there was no nausea and I was truly starving, any bite of anything I put to my mouth resulted in uncontrollable gagging. I could NOT EAT ANYTHING! After 15 days of this I spent 5 days in the hospital with acute metabolic acidosis. I have been off this d...

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Jack | 45-54 | Male | On medication for 10 years or more | Patient
9/11/2019
Condition: Excessive Copper Deposits in the Liver and Brain
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Been taking this for 18yrs now with no side effects or issues. My wilsons has been in check since

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skorf | 55-64 | Female | On medication for 1 to 6 months | Patient
10/28/2013
Condition: Other
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Horrifying side effect. I had dysgeusia (severely disgusting taste in my mouth like I was eating something totally rotten) so bad that even though there was no nausea and I was truly starving, any bite of anything I put to my mouth resulted in uncontrollable gagging. I could NOT EAT ANYTHING! After 15 days of this I spent 5 days in the hospital with acute metabolic acidosis. I have been off this drug for 3 weeks and still have the nasty taste I my mouth. I have found 2 things I can eat, but they taste bad. I can get them down but my mouth tastes terrible all the time. The only thing I can drink is water. Everything else gags me. I'm totally frightened that this won't go away. My advice: GET AS FAR AWAY FROM THIS MEDICINE AS YOU CAN!!!!!!!Read More Read Less

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Anonymous |
11/15/2010
Condition: Excessive Copper Deposits in the Liver and Brain
Overall rating 5.0
Effectiveness
Ease of Use
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I have taken Penacillamine for Wilson's disease for 36 years and it works great. No side effects and the tremors associated with copper build-up decreased dramatically.

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