User Reviews for hydroxyurea oral

I was diagnosed 11 years ago with polycythemia vera and ET. I have taken 1500 mg every day since that day. I have had my white count up to 18 and as low as 4. My hair has thinned very much. No other problems with this drug.

My disease is polycythemia rubra vera.After 4 weeks of the drug(500mg/day) ,WBC,Hgb and plt came to near normal. Then long about the week 6, chills,high fever and nausea. Dr stopped it for 2 weeks. So I tried one more and got the same result. Also elevated liver function. Worried that the next choice is anagrelide-with more risks. I am thankful I don't have a serious cancer.

I have been on hydroxyurea for about 2 years. I take 500mg and 1000 mg alternating days. I am also on 16o mg asprin. I experience minimal side effects but would like to explore the reasons for developing this disease. I was on Actonel and other supposed bone strengthening meds for years and wonder if there is a connection

I have had Polycythemia vera for about 5 years now. Have taken this med for about 4+ of those years, all my numbers are normal and it has helped me immensely

Polycythemia Vera. I started with two 500mg daily and after four months my numbers were looking very good and heading towards normal range. In week four, numbers went back up. Dr. changed me to 1000 mg every other day and 1500 the other days. I get my blood checked next week. Also scheduled me for two weeks of phlebotomies. I am hoping for the best.

I was diagnosed with ET about two and a half years ago and took two 500 mg of hydrea a day. Nine months later I was told my kidney`s were failing. VERY devestating. I saw a nephrologist and have been able to stay off of dialysis by keeping a very strict diet. I switched hemotologists and asked if I could reduce my dosage to one a day and she agreed. My kidney function went up slightly. Now that second hemotologist only sees hospital patients and I`ve been assigned another hemotologist who wants me to take Anagrelide 0.5 mg once a day. This also is bad for your kidney`s. My main concern is my kidney`s and I`m at a loss as to what to do. I go in 3 weeks for another blood test. It`s a hard decision as to whether I want to die from a blood clot and heart attack or stroke, or die from kidney failure. There are a zillion problems with dialysis and transplant. Read More Read Less

SONETIMES TIRED AND A LITTLE OUT OF BREATH

I have beeb taking this medication since 2/15/2009. I very between 1000mg to 1500 mg per day. It has hepled me greatly in controlling my red blood cell problems.

My 3 year old has sickle cell anemia. She has been taking hydroxyurea for 1 year. It has been an absolute God send for us. She used to have a crisis that required hospitalization atleast once a month. Since beginning this drug she has only been hospitalized twice(briefly). All of blood levels great, almost like she doesn't have Sickle cell. She is growing like a weed, and is healthy and happy. I pray this continues to work for her, i'm so grateful that my baby doesn't have to endure all of those painful crisis anymore. Read More Read Less

I've been taking two pills a day for five days for over a year now. My platelets were too high and now they are about normal. Until I read up on this drug, the side effects I have as a result of taking this drug was a blessing to know. Everyday now, my get up and go has gone. I have bone aches and get around slowly now, getting up out of the car isn't easy and hair thinning. I discussed these symptons with doctor and was told to get out and walk and exercise more. Oh well, you can't win all the time. Also, constipation is another big problem can't seem to get back my natural rymthm anymore. Well, one blessing so far, I am cancer free thank you lord.Read More Read Less

I wea prescribed this meds by my Heamologist to combat high placelet count, Increases WBC's and RBC's for two weeks and the changed over to Cap Agyrilin 0.5mg qid till now as the perimetes came WAY down below Normal levels.

i havent had any problems with this meds, except fighting colds etc. i was diagnosed with polycythemia vera on sept 2 2009. after i had my first stroke. the thickening of the blood caused a 100% blockage of my right cariod artery.

Prescribed hydroxyurea to manage symptoms of essential thrombocytosis (ET, chronic elevated platelets). Have been on regimen 6000mg/wk for 2 1/2 yrs. No severe contradictions due to meds. Required about 8 weeks to realize stable dosage - once level dose established counts remain fairly level (slightly high platelets, slightly low white counts). Minor nusanceances due to drug are sporadic hair thinning, thinning/breaking of finger nails, bone/joint/muscle pain, minor mouth sores, extremely sensitive teeth, moderate fatigue, slow healing from bumps,scrapes and cuts. Am very careful to protect from crowds, shaking hands, etc. Otherwise am able to work-out regularly, play softball and basketball, healthier than other old foggies I know! Still, would rather not be on any meds for any reason.... Read More Read Less

prescribed for essential thrombocytosis (ET) - over production of platelets. On high dose regimen for 2 yrs 6 mo now, with no chronic disabling issues due to drug. annoyances are sporadic hair thinning, teeth hurt and are sensitive to all temperature change, thinning finger nails, slow to heal from minor scrapes etc. having more than 1-2 beers or cocktails will cause joint and bone pain... otherwise i am able to work out, play basketball and softball, in fact better shape than any of the other old foggies around (50 yrs). i see the dr. every 6 weeks to monitor. stable counts with with just slightly elevated platelets and slightly low white counts. have to be extremely cognizant of shaking hands, being around sick people etc. all said, would rather not have to to take a million miligrams of anything for any reason. Read More Read Less

At first I had alot of energy taking this med but it wore off after awhile.My dosage got incrased and now I have some but not much energy at all

I'm confused as I've taken this drug for 4 years and my doctor took me off due to mouth ulcers. Do I not need this to control my blood platelets and what can I expect by not taking it?