How to Manage Hair Loss From Lupus

Medically Reviewed by Jabeen Begum, MD on November 19, 2021
2 min read

Lupus can cause two forms of hair loss: scarring alopecia and non-scarring alopecia. In scarring alopecia, you’re likely to experience permanent hair loss because of Discoid Lupus Erythematosus (DLE). This type of lupus only affects the skin and is typically reserved for areas of your skin that are exposed to light. This includes your head, neck, and back of your hands. When the coin-shaped (discoid) lesions occur on your scalp, they likely cause permanent hair loss. 

Non-scarring alopecia typically occurs if you have Systemic Lupus Erythematosus (SLE). This usually causes thinning hair, but it’s not permanent. Non-scarring alopecia causes your hair to be fragile and break easily, making your hair strands shorter than usual. You may notice your hair thinning around the front edges of your hairline. This type of hair loss happens when your body is experiencing increased lupus activity, meaning it’s saving your energy and calories for more important bodily functions. Once your SLE is under control with treatment, you’ll likely see more hair growth. 

Below, you’ll find ways to manage your hair loss from lupus.

Taking preventative measures can help you fight against hair loss. Taking immediate action to get your lupus under control can reduce your need for hair loss treatment in the future. Some preventative measures you can take are below. 

Avoid light exposure. Photosensitivity is common in lupus patients, and exposure to sun and UV rays can cause flare-ups. Wearing sunscreen, a wide-brimmed hat, long sleeves, and long pants when outside are essential. Even if it’s cloudy outside, 70% of UV rays can still make it through to your skin.

Even energy-efficient fluorescent lighting can emit UV rays. Make sure to talk to your doctor about the safest artificial lighting for you that won’t cause lupus flares. 

Get lupus treatment quickly. If you think you may have lupus, you should talk to your doctor. Getting a diagnosis and starting treatment can help you avoid getting irreversible hair loss from DLE. 

Manage your stress levels. High-stress levels can cause lupus flare-ups. Keeping a healthy mind and body can reduce your risk for lupus flares. Try meditating or yoga to help maintain a stress-free mindset.

Over-the-counter (OTC) medications like Rogaine won’t work for lupus-related hair loss. Talk to your doctor before taking any OTC medications. Even dietary supplements designed to help your hair growth can cause complications with the lupus medications you’re taking. You should always discuss supplements and treatments with your doctor before taking anything new.