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What kinds of emotions do some new or expecting parents feel after they learn their baby has a life-threatening disease?

ANSWER

Some of the most common reactions include:

  • Disbelief of the diagnosis
  • Guilt for the possibility of having done something that may have caused this
  • Thoughts of not carrying a pregnancy to term and associated guilt
  • Fear of never being able to have a healthy child

From: Neonatal Palliative Care: Focus on Life WebMD Medical Reference

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

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What do birth plans include if you have a baby with a life-threatening disease?

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