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What should parents know about their baby's life-threatening condition?

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Parents should learn everything they can about their baby's condition after they've had time to process their emotions.

One thing parents need to understand about the diagnosis is that doctors can only provide an average life expectancy -- and no individual is exactly average. Parents can sometimes be just as distressed if a baby surpasses his life expectancy as they would be if he didn't reach it. This distress is caused in part when they don't know what to do with their child if he lives longer than expected. For this reason, contingency plans should always be in place.

From: Neonatal Palliative Care: Focus on Life WebMD Medical Reference

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

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Should you consider getting a second opinion if your baby is diagnosed with a life-threatening illness?

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