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What wishes should parents consider if their unborn baby or newborn has a life-threatening disease?

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This wish list may include taking family pictures, receiving visitors, and diapering and dressing the baby. Some parents express the desire to just have some time alone with their child. A palliative care team will do what is needed to honor the parents' wishes.

Doctors recommend that before the birth, couples discuss not just the baby's life-threatening illness but his life, as well. Parents have said that making plans helped them feel in control of their situation.

From: Neonatal Palliative Care: Focus on Life WebMD Medical Reference

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

SOURCES:

Carter, B.S. , November 2004. Pediatric Annals

Chrastek, J.R. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Gale, G. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

List, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Reilly-Smorawski, B. , January 2002. Death Studies

Toce, S. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Tyler, M. K. , February 2007. ChiPPS Pediatric Palliative Care Newsletter

Terri Major-Kincade, MD, Neonatologist, Pediatrix Medical Group, Richardson, Texas.

Reviewed by Dan Brennan on January 09, 2018

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What should parents know about their baby's life-threatening condition?

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