This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. Founded 1991. Provides emotional support and information to persons with facial differences and their families. Network includes families who have similar concerns. Promotes public education and awareness. Also has cleftAdvocate program which provides online parent-patient support network. Newsletter, information and referrals.
P.O. Box 751112
Las Vegas, NV 89136
Voice: 1-888-486-1209 or 702-769-9264
International. Provides support and information for those who have Apert Syndrome, a genetic craniofacial (and sometimes includes bim(s)) defect. Website has listserv, chat-room, pen-pals and forum.
Apert International, Inc.
PO Box 2571
Columbia, SC 29202