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    Progressive Supranuclear Palsy

    Important
    It is possible that the main title of the report Progressive Supranuclear Palsy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • PSP
    • nuchal dystonia dementia syndrome
    • Steele-Richardson-Olszewski syndrome

    Disorder Subdivisions

    • None

    General Discussion

    Progressive supranuclear palsy (PSP) is a rare degenerative neurological disorder characterized by loss of balance and impaired walking; loss of control of voluntary eye movement, especially in the downward direction; abnormal muscle tone (rigidity); speech difficulties (dysarthria); and problems related to swallowing and eating (dysphagia). Affected individuals frequently experience personality changes and cognitive impairment. Symptoms typically begin after age 60 but can begin earlier. The exact cause of progressive supranuclear palsy is unknown. PSP is often misdiagnosed as Parkinson disease, Alzheimer disease, or other neurodegenerative disorders.

    Resources

    WE MOVE (Worldwide Education and Awareness for Movement Disorders)
    5731 Mosholu Avenue
    Bronx, NY 10471
    USA
    Tel: (347)843-6132
    Fax: (718)601-5112
    Email: wemove@wemove.org
    Internet: http://www.wemove.org

    CurePSP: Foundation for PSP l CBD & Related Brain Diseases
    30 E. Padonia Road, Suite 201
    Timonium, MD 21093
    Tel: (410)785-7004
    Fax: (410)785-7009
    Tel: (800)457-4777
    Email: info@curepsp.org
    Internet: http://www.curepsp.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    Progressive Supranuclear Palsy Association UK
    PSP House
    167 Watling Street West
    Towcester
    Northamptonshire, NN12 6BX
    United Kingdom
    Tel: 01327322410
    Fax: 01327322412
    Email: psp@pspassociation.org.uk
    Internet: http://www.pspeur.org/

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    National Parkinson Foundation, Inc.
    1501 NW 9th Ave/Bob Hope Road
    Miami, FL 33136-1494
    Tel: (305)243-6666
    Fax: (305)243-6073
    Tel: (800)327-4545
    Email: contact@parkinson.org
    Internet: http://www.parkinson.org

    UCSF Memory and Aging Center
    350 Parnassus Avenue
    Suite 905
    San Francisco, CA 94117
    Tel: (415)476-6880
    Fax: (415)476-4800
    Email: mgeschwind@memory.ucsf.edu
    Internet: http://www.memory.ucsf.edu

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 4/19/2011
    Copyright 1986, 1987, 1988, 1990, 1992, 1996, 1997, 1998, 1999, 2000, 2005, 2008, 2011 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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