International. Founded 1970. Support for parents of children and adolescents with cancer, their families, adult survivors of childhood cancer and the professionals working with them. Links parents, families and groups. Provides free educational resource materials and advocates on behalf of childhood cancer.
American Childhood Cancer Organization
P.O. Box 498
Kensington, MD 20895-0498
Voice: 1-800-366-2223 or 301-962-3520
National. Lists local lung cancer support groups. They also provide a guide for lay persons on how to start a local lung cancer support group. Provides other literature. Click on 'Facing Lung Cancer,' first menu bar item on left (below their name), then click on 'Support' to view local listing of groups.
Lung Cancer Alliance
888 16th St. NW, Ste.150
Washington, DC 20006
Voice: 1-800-298-2436 (9-5pm EST)
National network. Founded 1986. NCCS believes in evidence-based advocacy that reflects the needs of all cancer survivors to effect change at the national level. Mission is to advocate for quality of cancer care for all people touched by cancer and provides tools and resources that empower people to advocate for themselves. Provides information on employment and insurance issues, referrals and publications. Cancer Survival Toolbox(r) is available free of charge.
1010 Wayne Ave., Suite 770
Silver Spring, MD 20910
Voice: 301-650-9127 (Mon.-Fri., 8:30am-5:30pm EST)
(BILINGUAL) National. 9 affiliated groups. Founded 1978. (formerly known as Y-ME National Breast Cancer Organization) Mission is to decrease the impact of breast cancer, create and increase breast cancer awareness, and ensure through information, empowerment and peer support that no one faces breast cancer alone. Information and peer support for breast cancer patients and their families during all stages of the disease. Offers 24-hour hotlines (English and Spanish), a Latino Outreach program, a Men's Match program for husbands and partners of women with breast cancer, support groups, a Teen Education program and Advocacy Network, publications, wig and prosthesis bank and newsletter. Group development guidelines.
Breast Cancer Network of Strength
135 South La Salle St., Ste 2000
Chicago, IL 60603
Voice: 1-800-221-2141 (English 24 hr.) or 1-800-986-9505 (Spanish 24 hr.)
(BILINGUAL) National. 66 chapters. Founded 1949. Educational materials, patient financial aid, support services for patients, families and friends coping with leukemia, lymphoma, myeloma and other blood cancers. Support group meetings schedule depends on location. Patients should consult local chapter. Live help online (10am-5pm EST).
The Leukemia and Lymphoma Society
1311 Mamaroneck Ave.
White Plains, NY 10605
Voice: 1-800-955-4572 or 914-949-5213
International. 150 affiliated groups. Founded 1984. Provides support and advocacy for prostate cancer patients, their families and the general public at risk. Information relative to the advancements in the detection, diagnosis, evaluation and treatment of prostate cancer. Information, referrals, phone help, conferences and newsletter. Group development guidelines.
P.O. Box 141695
Grand Rapids, MI 49514-1695
International. 300 affiliated groups. Founded 1990. Offers support and education men and their families through fellowship and peer counseling. Timely, personalized, unbiased and reliable information about prostate cancer. Monthly newsletter distributed through support groups and also on website.
Us TOO International Prostate Cancer Education and Support Network
5003 Fairview Avenue
Downers Grove, IL 60515-5286
Voice: 1-800-808-7866 or 630-795-1002 (Mon.-Fri., 9am-5pm CST)
Model. 1 group in Minnesota. Founded 1990. Support, education and advocacy for black women and men with breast cancer and their families. Provides information and referrals, education, and a support group for patients and survivors to discuss issues and concerns. Open to anyone interested in supporting and working with this grass-roots organization.
P.O. Box 8981
Minneapolis, MN 55408
National. 100+ affiliated groups. Founded 1991. Patient-directed support program offering information, encouragement, support, acceptance and self-expression for persons with oral, head and neck cancer. National Survivor Volunteer Network offering one-on-one support, phone support, educational programs and publications. Assistance in starting groups. Membership dues $25 (includes 8 newsletters).
P.O. Box 53
Locust Valley, NY 11560-0553
International. Founded 1990. Provides information about kidney cancer to patients and doctors. Sponsors research and advocates on behalf of patients. E-newsletter, literature, conferences, information and referrals.
Kidney Cancer Association
1234 Sherman Ave., Suite 203
Evanston, IL 60202
Voice: 1-800-850-9132 or 847-332-1051 (Mon.-Fri., 9am-5pm CST)
National. 40 affiliated chapters. 3,000 members. Founded 1994. African American breast cancer survivors organization that promotes the importance of breast health through empowerment, support, breast education programs, resource information and clinical trials.
Sisters Network Inc.
2922 Rosedale St.
Houston, TX 07004
Voice: 1-866-781-1808 or 713-781-0255 (9am-5pm CST)
Model. 35 groups in New Mexico. Founded 1983. Helps cancer survivors and their loved ones make informed choices and improve the quality of life by sharing in a community of people who have 'been there.' Newsletter, information and referrals, support groups and advocacy. Dues $35/yr. (includes subscription to journal). Conducts national training for American Indians and Alaskan natives who are interested in developing cancer survivorship programs based on a grassroots program serving Pueblo Indians.
People Living Through Cancer
3411 Candelaria NE, Ste. M
Albuquerque, NM 87107
National. 80 affiliated divisions. Founded 1995. Promotes education and awareness regarding ovarian cancer for patients, families and medical community. Information and referrals, networking, conferences, literature and phone support.
National Ovarian Cancer Coalition
2501 Oak Lawn, Suite 435
Dallas, TX 75219
National. Founded 1944. Support for cancer patients and their families. Financial assistance, information and referrals, community and professional education. On-going telephone, online and in-person support groups. Free counseling.
Cancer Care, Inc.
275 Seventh Ave.
New York, NY 10001
Model. Founded 1995. Offers emotional support to the mothers of daughters newly diagnosed with breast cancer to help them to be better 'care partners' to their daughters. Helps mothers cope with stress, learn about breast cancer treatment and promote breast cancer awareness. Literature, advocacy and phone support.
25235 Foxchase Dr.
Chestertown, MD 21620
Model. Several groups in Washington, DC. Founded 1990. Cancer support and survivorship groups for lesbian, bisexual and transgender women who partner with women (WPWs), their partners and caregivers. Bereavement support groups for WPWs who have lost a partner, friend or loved one. Smoking cessation groups for the lesbian, gay, bisexual and transgender community. Health self-empowerment groups for black WPWs. Provides phone and online support to WPWs outside the DC-Metro area. Provides LGBT cultural competency training to health care professionals and their staff members. Information and referrals, phone support, literature, newsletter and advocacy.
1875 Conn. Ave. NW, Suite 710
Washington, DC 20009
Voice: 1-866-628-8637 or 202-332-5536 (Mon.-Fri., 9am-5:30pm EST)
International network. 100+ groups in the US. Founded 1990. Mission is to improve the quality of life of myeloma patients while working toward a prevention and a cure. Educational and supportive programs, information packets, phone support and newsletter. Networks patients together for mutual support. Referrals to self-help groups nationwide. Guidelines offered to assist those interested in starting a group.
International Myeloma Foundation
12650 Riverside Dr., Ste. 206
North Hollywood, CA 91607
Voice: 818-487-7455 or 1-800-452-2873 (Mon.-Fri., 9am-4pm PST)
National. 18 chapters. Founded 1991. Devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with critical information on the disease. Provides information and emotional support for lymphoma patients and their families. Offers free educational materials, lymphoma helpline, national buddy program, quarterly newsletter, annual patient educational forum and local seminars. Fundraises for research. Advocacy. Some materials available in Spanish and Chinese.
Lymphoma Research Foundation
115 Broadway, Ste 1301
New York, NY 10006
Voice: 212-349-2910 or 1-800-500-9976
National. 17 affiliated groups. Founded 1993. Opportunity for children who have a parent with cancer to connect with other children in similar situations for support and understanding. Groups are headed by youth leaders and co-facilitated by professionals. Youth Leadership program, monthly meetings, newsletter, summer camps, information and referrals.
Voice: 1-800-899-2866 or 949-582-5443 (24 hr.).
Online. Founded 1999. Support and education for women whose family history and genetic status put them at high risk of getting ovarian or breast cancer. Open to family members. Provides resources for women to determine if they are at high risk. Forums, chats, bulletin boards, member profiles and phone support network.
National network. Founded 1986. Support network to help patients and families dealing with familial polyposis and hereditary colon cancer. Provides information and referrals, encourages research, educates professionals and public. Phone support network, correspondence and literature.
c/o Ann Fagan
P.O. Box 11
Conyngham, PA 18219
Voice: Ann Fagan 570-788-1818 (day) or 570-788-3712 (eve.)
(BILINGUAL) Model. Founded 1976. Provides support to women with breast or ovarian cancer, their families and friends. Support groups led by trained survivors. Cutting edge educational forums and advocacy activities held throughout the five boroughs of New York City.
1501 Broadway, Suite 704A
New York, NY 10036
International. Founded 1997. Created by three women who were diagnosed with cancer while pregnant. Mission is to let women know that they are not alone in their facing their cancer diagnosis while pregnant. Connects women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis. Newsletter.
Hope for Two...The Pregnant With Cancer Network
P.O. Box 253
Amherst, NY 14226
National. Support, education and communication for people with all types of thyroid cancer, as well as caregivers. Outreach to the public for thyroid cancer awareness and early detection. Twelve online support groups, local support groups, free online newsletter, free downloadable low-iodine cookbook, free patient information booklet and packet, free regional workshops, free webinars, annual international conference and free thyroid cancer awareness brochures. Thyroid Cancer Awareness Month, funding for research and educational website.
ThyCa: Thyroid Cancer Survivors' Association, Inc.
P.O. Box 1545
New York, NY 10159-1545
Online. 1800+ members. Support for teens with cancer and their parents. Weekly scheduled online support groups with professionals, discussion boards, resources, information and news about many types of cancers and their affect on teens.
National. Founded 1968. Provides support, information and educational materials to patients, caregivers and medical professionals dealing with carcinoid cancer and related neuroendocrine tumors. Support groups located throughout the United States. Online support groups, e-mail and toll-free telephone support available. Conducts conferences, supports research and maintains a carcinoid and neuroendocrine tumor database.
Carcinoid Cancer Foundation
333 Mamaroneck Ave., Suite 492
White Plains, NY 10605
Voice: 1-888-722-3132 or 914-683-1001 (Tues.-Thurs., 10am-4pm EST)
International. 15 affiliates. Founded 1998. Support and education for young women (age 40 and under) living with a diagnosis of breast cancer. Addresses the concerns and issues that are unique to young women and breast cancer (such as higher mortality rates, fertility issues and early menopause). Information, resources, advocacy, one-to-one Point of Contact Program and online support forums.
Young Survival Coalition
61 Broadway, Suite 2235
New York, NY 10006
Voice: 1-877-972-1011 or 646-257-3000
International. Founded 1998. 4500+ members. Provides on-going support system for women, family members and friends facing issues related to cervical cancer, HPV and other HPV cancers. Offers phone pal system matching women together for support, online moderated message board, newsletter, annual conferences, information and referrals. How-to materials on starting a local NCCC chapter available.
National Cervical Cancer Coalition
6520 Platt Ave., #693
West Hills, CA 91307
Voice: 1-800-685-5531 or 818-992-4242
Online. Click on 'Mailing Lists' for over 150 e-mail support groups where patients, caregivers and survivors share their experiences with many different cancers: lung, colon, pancreatic, melanoma, endometrial, esophageal, leiomyosarcoma, male breast, metastatic, myeloproliferative disorders, mycosis fungoides, various sarcomas, stomach, testicular, thyroid, pediatric, retinoblastoma, etc., as well as possible related issues such as fatigue, finance, depression, bone marrow transplant, facing the death of a loved one and other situations.
Online. 190+ members. Founded 2002. Mutual support for testicular cancer survivors who are in their teens and twenties. Discusses the physical, social and psychological aspects of the disease.
Online. 350+ members. Support group for all patients with thymic-related cancers and thymomas.
National. Provides support, information, advocacy and research for those with oral cancer.
Oral Cancer Foundation
3419 Via Lido, Ste 205
Newport Beach, CA 92663
Voice: 949-646-8000 (Mon.-Fri., 9:30am-5pm PST)
Offers mesothelioma telephone support groups for patients, families and caregivers. Groups include peritoneal, chemo, caregivers, grief, extrapleural pneumonectomy (EPP)/pleurectomy decortication (PD) and spousal support. Pre-registration required.
The Meso Foundation
1317 King Street
Alexandria, VA 22314
Voice: Mary Hesdorffer 1-877-363-6376
Online. Support for people 21+ years old who have been diagnosed with cancer.
Cancer Support Community
1050 17th Street NW, Ste 500
Washington, DC 20036
Online. Offers video/clips, support groups and stories for children and youth diagnosed with cancer.
Prepare to Live
511 Sixth Ave., No. 271
New York, NY 10011
Online. Support for young women, under 45 but will welcome anyone, who has been diagnosed with cancer.
PO Box 101283
Denver, CO 80250
Online. Support for teens through chats and blogs, who have been diagnosed with cancer, plus interactive video for children.
Starlight Children's Foundation
2049 Century Park East, Ste 4320
Los Angeles, CA 90067
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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