Gorlin Syndrome / Basal Cell Carcinoma Nevus Synd
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International network. Provides support services to patients, families and medical professionals dealing with the many manifestations of Basal Cell Carcinoma Nevus Syndrome (aka Gorlin Syndrome or Nevoid Basal Cell Syndrome). Offers: online forum; Quarterly Advocate newsletter; annual retreats; interdisciplinary conferences; periodic educational regional meetings; for families, caregivers, healthcare professionals, to develop and encourage a working knowledge of this complex condition in order to understand treatment options; provide clinical trial enrollment opportunities; increase family history awareness and develop self-esteem.
BCCNS Life Support Network
PO Box 321
Burton, OH 44021