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Read user comments about the side effects, benefits, and effectiveness of Agrylin Oral.

Overall User Ratings

33 Total User Reviews

User Reviews

«Previous 6-10 of 16 Next»
Condition: Elevated Platelets with Rapid Growth of Bone Marrow
5/14/2010 3:14:54 PM

Reviewer: Sue, 35-44 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
When I was diagnoised w/high platelets, they were at 1.4million. 3 yrs later, it is still around 600,000+, should be under 400,000. I have rapid heart rate after each dose, lasting about 30min. I take 3 -.5mg/day. I am tired a lot, but feel better than I did at 1.4million. I exercise several times a week and this has had an effect on my platelets also. So, taking my rx, asprin a day & exercise ... Show Full Comment

Condition: Elevated Platelets with Rapid Growth of Bone Marrow
3/25/2010 3:52:00 PM

Reviewer:

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
I have been taking this drug for 10-12 years. Lately I have been experiencing rapid heart beats 140, with no physical activity or side effects other than weakness.

Condition: Elevated Platelets with Rapid Growth of Bone Marrow
1/23/2010 7:54:26 PM

Reviewer: Gabriel, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I have been taking this drug since August of 2003. Since than, I had a sensitive pain on my left side on my spleen, which I was fearing that I may had to go for surgery, luckily I started to watch my diet intake and it healed. Now 2010, My knee, hip and wrist and fingers hurts, like if I had arthritis. I take 6 capsules of 0.5 in the morning and 6 at night with meals each time. Now my oncologist i ... Show Full Comment

Condition: Elevated Platelets with Rapid Growth of Bone Marrow
1/6/2010 11:45:52 PM

Reviewer: campbell, 35-44 Female on Treatment for 10 years or more (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
I am 39 years old and was diagnosed with thrombocythemia 17 yrs ago. My platelet count was 1,600,000 when first diagnosed and today it's about 700,000. I was fortunate enough to be in a case study at Yale (given agrylin before it was approved by the FDA and have been on it since then). The biggest side effect that I have experienced is a rapid heart rate and palpitations. I also feel fatigued ... Show Full Comment

Condition: Elevated Platelets with Rapid Growth of Bone Marrow
9/2/2009 2:06:52 PM

Reviewer: lkschafer@aol.com, 55-64 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
My platelet count went up to over a million four hundred thousand, then the agrylin kicked in and three weeks later my count was down to 700,000. But...the doctor had to up the dosage to 6 - 1mg. per day. Most days I feel yuck, some days have some diarreah. Could this be from the agrylin?

«Previous 6-10 of 16 Next»
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