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    Read user comments about the side effects, benefits, and effectiveness of Agrylin oral.

    Overall User Ratings

    34 Total User Reviews

    User Reviews

    1-5 of 17 Next»
    Condition: Elevated Platelets with Rapid Growth of Bone Marrow
    12/31/2015 1:56:55 PM

    Reviewer: me me, 65-74 Male on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 4

    Comment:
    Having problems getting the drug now. My doctor is unable to find a pharmacy that carries it. Have been off the drug since the week after Thanksgiving 2015 and no luck on finding a provider. Anyone know where I can order this drug from?

    Condition: Elevated Platelets with Rapid Growth of Bone Marrow
    4/11/2013 11:49:10 PM

    Reviewer: peternguyen, 45-54 Male on Treatment for 5 to less than 10 years (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 5

    Comment:
    I have take this dedication since 2006 but on an off, my reading is in 600-750 right now, always rapid heartbeat but is ok, my liver hurt at time,my spleen hurt too at time,i sometime feel yucky and confusion sometime.my doctor told me 5% of ET patient will develope leukimia ,I hope he's wrong but I wonder how long can ET patient live? I red the review and some still alive after 18years that i ... Show Full Comment

    Condition: Elevated Platelets with Rapid Growth of Bone Marrow
    3/20/2012 9:37:55 AM

    Reviewer: 65-74 Male on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    i am on agrylin 3 years went from 100,000 down to 397,000

    Condition: Elevated Platelets with Rapid Growth of Bone Marrow
    11/19/2011 6:27:43 PM

    Reviewer: dkb, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I started out using Hydrea until I could no longer obtain it. My doctor switched me to Agrylin which I have been using for about 8 years. I do have rapid heartbeats and some hair loss but nothing I can't live with. I take .5mg 4 times a day. My platelet count has come down from 1.5mg to 400,000mg.

    Condition: Elevated Platelets with Rapid Growth of Bone Marrow
    1/23/2011 6:56:40 PM

    Reviewer: 55-64 Female on Treatment for 10 years or more (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 4

    Comment:
    I have been taking this for about 15 years. It controls my platelets. 8 years ago I had a bloody nose that would not stop and I was in the hospital for 5 dyas. Since then I stopped taking aspirin since I feel it causes bleeding in combo with agrlyn. I now have lyme disease that has become chronic and my immune system numbers are very low even when I do not feel too bad. I read somewhere that lyme ... Show Full Comment

    1-5 of 17 Next»

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