Show ratings & reviews for

3.7 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

23 People found this comment helpful

I have been on Betaseron since 1995. My neurologist strongly feels it has made the difference between being in a wheelchair and walking with a cane, as I do now. After 15 years I have never developed antibodies against the drug. I take two Tylenol to alleviate the flu-like symptoms with each injection. I urge others with MS not to give up. A positive attitude helps as much as any medicine.

Most voted negative review

2 People found this comment helpful

i am an ms patient 4 nearly 19yrs now. my doc is telling me 2 use betaseron but this drug is not yet available in the philippines. i can not find any links that would possibly lead me into. can webmd possibly help? thank you.

Shared reviews and ratings

Anonymous | 55-64 | Female | On medication for 2 to less than 5 years | Patient
6/10/2011
Condition: Multiple Sclerosis
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Have been on Betseron for 2 yrs and no new lesions but flu like sypmtoms have been constant also general weakness. Went off meds for 2 months and feel human again. Just got notice from mt insurance co. that they will no longer cover Betaseron (they recommend Extavia) so the decision of going back on this medication has been taken out of my hands. Will be discussing next step with my doctor.

Report this postFill 3Created with Sketch.
Anonymous | 25-34 | Female | On medication for 1 to 6 months | Patient
4/20/2011
Condition: Multiple Sclerosis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I was on Extavia for the past year with no problems. Due to insurance changes, I had to change to Betaseron 2 months ago. I have had many injection site reactions and other side effects that were not issues when on Extavia despite being told they were the "SAME EXACT" medications. I would change back to Extavia given the chance.

Report this postFill 3Created with Sketch.
Beener | 35-44 | Female | On medication for 5 to less than 10 years | Patient
3/16/2011
Condition: Multiple Sclerosis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I believe this medication has helped stabalize my MS symptoms and lesions. Had taken copaxone prior to Betaseron and had too many reactions as well as no improvement with MRIs or symptoms. Switched to Beta in 2005. Injection site side effects: redness and itching along with some small knots. I do get occasional flu like symptoms after taking the meds but take Tylenol for it. My last blood check shows some issue with my liver so I will have to see if I can remain on Beta. I will take the side effects if it keeps my MS at bay. But if my liver is not liking the meds, I may have to consider other options (if there are any.) Overall, it is my belief this medication has helped keep my MS from worsening.Read More Read Less

Report this postFill 3Created with Sketch.
readfullinfofirst | 45-54 | Female | On medication for less than 1 month | Patient
3/7/2011
Condition: Multiple Sclerosis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

I was on Copaxone for about four years, and suddenly I was rushed to the ER (via 911) and diagnosed with Pulmonary Embolism (blood clots) in my lungs, it was also determined that I had high liver enzynes.My neurologist has told me to discontinue Copaxone. I started using Betaseron in Feb. 2011, I had shortness of breath immediately (in 4-5 min) after the injection, severe stiffness on the left side of my neck,severe headache, dizzness, increased heart beats, and other less severe symptoms, overall, I just did not feel well immediately after the injection. I recorded and reported these symptoms. My Neurologist has told me to discontinue Betaserone. It was suggested that I may be sensative to the MS medications. Betaserone was certainely not for me. My plan is to choose not to be on any therapy for my MS, but I will have to see what my Dr recommends first. I will comply with his treatment, but if it's up to me I will NOT take any more MS injections.Read More Read Less

Report this postFill 3Created with Sketch.
s_green | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
12/9/2010
Condition: Multiple Sclerosis
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Injestions aren't fun, but the nurse hotline provided by this drug's manufacturer employs really helpful, sympathetic professionals. The needle really is thin, the symptoms have gotten less severe, and I feel better on this drug with no relapses. Everyone's experience will be different, but it's clear a lot went into making the home-injection process patient-friendly. If it is keeping your MS from flaring up, keep at it!

Report this postFill 3Created with Sketch.
angela | 35-44 | Female | On medication for 5 to less than 10 years | Patient
11/12/2010
Condition: Multiple Sclerosis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
[email protected] | 45-54 | Female | On medication for 10 years or more | Patient
10/11/2010
Condition: Multiple Sclerosis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

was misdiagnosed by a reputable doctor. my m.s. was actually devics disease,never should have been on beta seron.

Report this postFill 3Created with Sketch.
HJB | 55-64 | Female | On medication for 2 to less than 5 years | Patient
9/23/2010
Condition: Multiple Sclerosis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

I was on Betaseron between 1998 and Feb 2003. I had begun to feel ill after taking my shot. I worked full time despite having had MS since diagnosis of relaxing remitting MS in 1991. I had a bladder suspension operation in Nov 2002. No one told me increased urination was a side effect of the drug~ I was phoned by the MS clinic in February '03 and told I was to stop taking the "medication" immediatly as I had developed 'reciprocating antibodies'! I have since been diagnosed with 2ndary progressive MS and can barely walk with my walker...Read More Read Less

Report this postFill 3Created with Sketch.
ptuzinowski | 35-44 | Male | On medication for 5 to less than 10 years | Patient
9/20/2010
Condition: Multiple Sclerosis
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I've been on Betaseron for almost 8 years. I've had injection site reactions like bruising and welts under the skin. Sometimes I'll stop the injections for 3 to 4 days and I will have much more energy. I need to discuss this with my neurologist at my next visit. Sticking needles into my skin isn't something that I look forward to, even if it is every other day. The flu-like symptoms ended shortly after beginning the drug, but I feel that continuing on Betaseron is having a negative effect on my overall energy level.Read More Read Less

Report this postFill 3Created with Sketch.
diana | 25-34 | Female | On medication for less than 1 month | Caregiver
9/19/2010
Condition: Multiple Sclerosis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

for now my daughter is feeling better, no vertigo so far, and is easy to use..

Report this postFill 3Created with Sketch.
Carole | 45-54 | Female | On medication for 2 to less than 5 years | Patient
7/16/2010
Condition: Multiple Sclerosis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been on Betaseron for 3 years now. At first I had a few flu like symptoms but they soon went away. My biggest problem is bruising and redness at the injection site, I have had one bad relapse since taking this which was made better by IV infusion of steroids.

Report this postFill 3Created with Sketch.
Adam | 45-54 | Male | On medication for 10 years or more | Patient
6/2/2010
Condition: Multiple Sclerosis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have used Betaseron for 12 years. I have not had any relapses since my diagnosis that started with double vision. My MRI results have remained stable. I have had injection site problems in my thighs, stomache and arms.

Report this postFill 3Created with Sketch.
Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
5/21/2010
Condition: Multiple Sclerosis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

I switched from Avonex to Betaseron 6 months ago. The skin reactions - bruises, redness, lumps and necrotic spots - have become so sever I have stopped it. My MS syptoms are actually much better off the drug so I don't think it was the right one for me.

Report this postFill 3Created with Sketch.
[email protected] | 55-64 | Female | On medication for 10 years or more | Patient
3/25/2010
Condition: Multiple Sclerosis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I've been using Betaseron since it first came out. The first few years I used it I would get redness at the injection site which would either hurt or itch. For the last few years I've been getting extremely painful knots. I only inject myself in the stomach because the thighs are too painful, and reaching my butt is awkward. When I went off this medication for about a month several years ago, I noticed a pronounced increase in my MS symptoms. I went back on the Betaseron immediately. I just wish I didn't get the knots. Does anyone have any suggestions? Read More Read Less

Report this postFill 3Created with Sketch.
glady | 55-64 | Female | On medication for 10 years or more | Patient
3/19/2010
Condition: Multiple Sclerosis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have used Betaseron since 1995. I did have a relapse in 1996 leaving me semi-paralyzed on the right side. I used a wheelchair in the home. Shortly after the relapse, I returned to walking in the home unaided. I was left to believe that the Betaseron was a help.

Report this postFill 3Created with Sketch.
Anonymous | 45-54 | Female | On medication for less than 1 month | Patient
1/24/2010
Condition: Multiple Sclerosis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

This will only be my third shot of Betaseron, I sue the Auto Injector and have found it very easy to use, I have no bad reactions, at all from it, though i tend to give myself bad shots, where i bleed a little, still learning how to do the shots properly

Report this postFill 3Created with Sketch.
Anonymous | 25-34 | Female | On medication for 1 to 6 months | Patient
10/26/2009
Condition: Multiple Sclerosis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I started taking this medication in Aug 2009 and I haven't felt normal ever since. I get terrible headaches and extreme exhaustion. I feel like I'm in a fog the day after taking this medication. Thank goodness the flu-like symptoms have alleviated somewhat but I still get muscle aches and chills the night of my injections. I'm running out of places to inject myself since I have bruises and welts at the injection sites.

Report this postFill 3Created with Sketch.
princess | 19-24 | Female | On medication for 2 to less than 5 years | Patient
10/12/2009
Condition: Multiple Sclerosis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have done very good on this drug. I just don't like the new needles.

Report this postFill 3Created with Sketch.
spencer | 45-54 | Female | On medication for 1 to 6 months | Patient
9/26/2009
Condition: Multiple Sclerosis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I have had worsening of pain and haedaches. It has concerned me. I have been very sick since I started this medicine. Although other meds have also been prescribed that cause me difficulty so its been hard to know. I have stopped the others and lowered the dose to half seems to be more tolerable with the help of meds I was aalready on for pain. They tell me there is no document of other drug interactions.

Report this postFill 3Created with Sketch.
linda710 | 45-54 | Female | On medication for 10 years or more | Patient
8/18/2009
Condition: Multiple Sclerosis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have been on Betaseron since 1995. My neurologist strongly feels it has made the difference between being in a wheelchair and walking with a cane, as I do now. After 15 years I have never developed antibodies against the drug. I take two Tylenol to alleviate the flu-like symptoms with each injection. I urge others with MS not to give up. A positive attitude helps as much as any medicine.

Report this postFill 3Created with Sketch.

IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.

Read More