User Reviews for Dostinex oral

I was diagnosed with prolactinoma around 1996. I have been taking dostinex for about 5 years now and my prolactin level went from 75 to 20. I did have some side effects when I first started taking it, nothing major. Now I have no side effects. My tumor has not grown at all. I do still lactate, but not as bad as before the dostinex.

I was diagnosed with a pituitary tumor when I was 15 years old. Can you imagine what my parents thought when I was lactating at 15? My GYN prescribed Parlodel. I tried it for 2 years and it made me horribly ill the entire time, and it never lowered my prolactin level. Finally, I was referred to an endocrinologist. He put me on Dostinex. It is well worth the price. For a couple years I had no insurance and could not afford the medicine. After I got insurance again and began the dostinex again I could tell an amazing difference. When I was first diagnosed at 15 I had never had a period (a secret I managed to keep from my mother). I was told at that time that I would never have children. I put the hope out of my head then and decided I never wanted them since I couldn't have them. When I was 22, to my amazement, I became pregnant. My husband of course took all the credit for "curing" me. We now have a 4 year old son. After I had my soon, my tumor did get worse but I am still taking my Dostinex and my prolactin levels are normal, they used to be 1,300-1,400. Dostinex is they best thing that has ever happened to me. For all the women who are told you can't have children because of this, keep believing and keep trying! If it happened to me it can happen to you!! Good Luck!!Read More Read Less

Turns out I had microadenomas (mini tumours) in the pituitary gland pumping out prolactin for the past 25 years, with attendent weight gain, facial hair, lack of periods, etc. Once diagnosed (I will avoid the long story of patronising medical professionals who blamed every symptom on the fact that I ate too much), I was put on this drug. My prolactin levels have dropped from 5x that of a lactating woman to merely 2-3x and I feel MUCH better. I still get vague aches and pains, blood sugar fluctuations, and various other symptoms, but I have lost 3 stone, mestruate, and feel much more 'normal'. Have had no side effects, but my consultant has said that he won't up my dose from 0.25mg 2x/week, because that would drastically increase the risk of side effects. Have been on it 3 years now, no sign of the microadenomas shrinking, but am very grateful to have access to this drug.Read More Read Less

Does anybody know if the Dostinex is off the market?I was on it 2 years ago for 2 Months.My Prolactin didn't go away!I'm on Cabergoline0.5 mg/2/week still the numbers are high.Now I need to double the dose which I don't want.I gained weight,facial hair,less libido.Any body experiance hairloss with high prolactin?lets post all the symptoms that you are experiencing with this drug. .

I was diagnosed w/something very shocking to me in 9/08, which turned out to be a pituitary tumor. I wasnt sure how to handle this but my dr. was awesome! I've been on Cabergoline 0.5 mg (generic for Dostinex) for about 2 months and hope that I will be a lot better. The only downside is that it does make you a bit depressed, tired/drowsy,and is kind of on the pricey side, especially if u dont have insurance. For all of those out there that do have the same condition as me, dont worry your in good hands. =)Read More Read Less

i have been using this med. for about 8 years now. i was on it for a bout a year and my tumor went away. after about 2 years i had my blood leves checked and they were elvated again, so i'm back on the med. It worked the 1st time and i know it will work this time. i cant wait to see the results!

I've been trying to get pregant for 4 yrs. Then found out my prolactin was 90, also have a pit.tumor. Within 3 mths my prolactin is now 22! Very effective. Ovulated the first time on the 2nd mth. This is my 4th mth on the treatment and I look forward to my next MRI test. First 3 wks I was super tired and dizzy but it went away once my body adjusted. My doc told me this is the best drug for high prolactin at this time and other drugs have stronger side effects.

I have a pituitary tumor and in 6 mos. it has reduced almost 1/2 of what it was. All of my bad side affects I lived with for the past 15 yrs have disappeared.. It did take about 3 weeks to get use to takin it.

I was using parlodel when I was first diagnosed, but Dostinex has proven much more effective, in that it has reduced my tumor more rapidly than Dostinex and the side effects were far less.

In 1995, to my dismay I was diagnosed with a prolactin producing brain tumor. What a Terrible shock the news was to me. My porlactin levels were in the 1200 to 1300 range, and to make matters worse I am a male and my levels should have been from 0 to 26. My doc started me on Parlodel 30 mg PO daily. I became VERY sick and extremely depressed, both of which are side effects to Parlodel. I changed endocrinologists and my new doc put me on Dostinex 0.5 mg PO three times a week. Just last month my porlactin level was 14. This drug has saved my life. My tumor is managed by taking this medication. I assume I will take Dostinex for my entire life or until the medical field comes up with a better way to manage my condition. The downside is the cost of the medication, even in generic form. I have held several different jobs and insurance can be tricky at best. But well worth any and all hassle I have had to put up with. In my best estimation this drug is a MIRACLE!! I am an RN and try to stay abrest to any new treatments available, but as of late I have had NO surgery to correct the tumor due to the size and location. Wishing you all the BEST!! Male RN in Wichita, KS Read More Read Less

I had a cyst on my pituatary gland and had it removed in 1995. I was initially put on parlodel and it made me so sick that i couldnt handle it so I had the surgery. After my surgery the cyst started to grow back and my doctor put me on Dostinex. My level was 121 when I had the surgery and I went down to 60 afterwards. Once I was put on the Dostinex it went down to 26 in a short time. I am happy with that result. I still have to have an MRI each year to make sure it has not came back. The only disadvantage was that I didnt have any children, many doctors told me that i couldnt so I finally accepted it. I am now 36 years old and still on Dostinex, will be for the rest of my life but that is okay because fortunate for me the only side effect that i have is the dry mouth. There was a comment that someone wanted to know if there was a chance for children and I would like to say "yes" there probably is, dont ever give up on that...go to every Dr. you can until they say you can have kids. I dont even think you need to get injection (not sure of the name). I had another surgery back in Dec. of 2007 and had my left ovary and fallopian tube removed and my Dr. told me that I could have kids now. I was obviously confused since all my Dr's said that I could never have kids. Keep trying, never give up!!Read More Read Less

Dostinex is very expensive, It costs me 200.00 for 8 pills but this is the best medicine for this condition i've tried bromocriptine and it didnt work as good for me! I was amazed when the doctor told me my tumor had totally disappeared after being on dostinex for a while. I'm 31 and havent had kids yet i'm hoping i can have some one day with this disorder. My Endocronoligts told me there are some women that was able to and i just have to see a fertility endo doctor when i'm ready.

i has worked great i just wish i could afford it more.

For the overproduction of prolactin in my body this drug was amazing and after a couple of months my levels were practically normal. However, it caused my heartrate to speed up randomly and now I'm at the point where the cure is worse than the ailment, and before this, I was pretty healthy without any medical allergies or anything. Please be careful taking this.

I have only been on Dostinex for 2 months but have already seen a drastic increase-my prolactin level went from 150 to 42.2 in 8 weeks! I am hoping my numbers continue to get lower so I will eventually ovulate. Anyone else have pregnancy problems related and this drug helped you? Just curious....

My lab values decreased from 860 to 15 in just a few months--I felt better than I had felt in years. Now, I am having a difficult time finding it. I've tried the generic form as well as Parlodel, but they are not nearly as effective. 'Any news someone can give me regarding why it is so hard to get?

I had a large pituitary adenoma and Dostinex has lowered the prolactin level causing the tumor to totally shrink.