User Reviews for Letairis oral

I have PH secondary to Scleroderma, Primary Biliary Cirrhosis, Portal Hypertension. I am on a single therapy of Letairis since 11/07 & have been doing great! I watch my salt & fluid intake and only take medications prescribed for me by my PH specialist. A recent heart catheterization shows my PH numbers to be the lowest they have ever been. I did experience some edema with the med, but was able to control this with careful diet and diuretics. I experienced some headaches at the beginning of my therapy & now take the med at night; so far, so good. All in all, taken in consideration with what other PH patients go through, Letairis has helped me tremendously. I was on Tracleer when I was first diagnosed, but that affected my liver. I also tried Ventavis, but decided that that therapy was not for me (the side effects were not worth the benefit in my case - but I did not see any improvement. Of course, for others, Ventavis may work fine. The most important thing for a PH patient is to be educated about their illness, advocate for themselves, and take the best care they can of themselves. Do not let PH define who you are; instead be who you are without the disease. There is hope with PH and I am proof of it. Letairis definitely helps me at this stage of my illness and has actually helped me to improve.Read More Read Less

My PH is secondary to Scleroderma. I am on oxygen therapy and Ventavis. My doctor put me on Letairis one year ago. In that time, I had anemia (low red blood count),edema, palpitations, congestive heart failure, abnormally dry skin and went to the ER and was hospitalized 3 times before they determined that these were side effects from Letairis. I had been asking continually if the drug could be causing my problems; they finally agreed with me and I went off it 3 days ago. Many of my side effects have disappeared in that short amount of time.Read More Read Less

This medication has worked wonders for me. It has done a better job of controling my Pulmonary Hypertension than Tracleer and has not effected my liver like Tracleer.

My husband had been very ill for over 2years he is 40 years old since he has been taking this he has started to live again actually walked to the end of the street today this is a great drug !!

Have been on Letairis for several months - it is very expensive. To date I have shown no improvement in my condition. I will continue to take it in hopes there will be a change