User Reviews for Ampyra oral

While I can walk farther on this drug, I experienced electrical shocks in my legs as well as horrible nightmares from day one. My balance is much worse and I have taken many more falls.

I have actually only been taking this for 1 week. From the first pill it has helped. I had pretty bad foot drop and if you asked me to lift my leg, it would only raise 1 1/2 to 3 inches off the ground. Now I can bring it up to about my chest. My food drop is basically gone. Normally when I go to a store w/o a shopping cart, I use a cane, but I didn't need it after being on Ampyra for only 2 days. I would have to say that my worst day so far on Ampyra with walking would compare to one of my better days when I didn't take it. For the first day and a half, I had pretty bad dizziness and slight nausea but it has disappeard since then...I do have a bit of insomnia, but I've only been taking this a week, so I hope it will go away. I do need some PT for my left knee, but that wasn't doing too good before I was dxd w/ms and started having leg problems and is now worse from lack of exercise, so I am hoping that will help with the locking and buckling of my knee. *fingers crossed* that this little pill keeps working! It has given me a bit of self-confidence back already.Read More Read Less

This is my second (or third) post to this site. I've been on Ampyra since July 2010. After a few months it helped me get around easier. A while after that, I started going downhill. I suggested to my neuro that I stop the drug for a week or two and then re-start. My doctor told me not to stop all at once, but to take one pill a day for a week then stop. After my 4th day of taking 1 pill a day I started feeling terribly weak and went back to two pills. The problem is that the underlieing MS was getting worse - remember that Ampyra is NOT a disease modifier. Otherwise, I'm sleeping fine (most nights) and have suffered no ill effects from the medication. So, until something else comes around, Ampyra is my "drug of choice".Read More Read Less

It did nothing to help my walking and caused nausea. I stopped it. I took it about 3 weeks.the occasional vomiting and constipation was enough to make me give up.

I am a late diagnosis as so many were. I was having occasional falls without much injury until I took a bad fall (right leg didn't step up when it needed to) and was injured rather painfully. My MS nurse practioner told me about Ampyra and gave me a walking test and started me on PT until I could get the drug. The PT is so important--I was tested in many things and she made up a program to help me with leg strength and balance. After about a month of taking she retested me and there was a big difference. I continued the Pt until I was able to walh uphill and down without help. I feel strongly that the drug should be given with the PT. I didn't read all the reviews but it seemed to me that the men had worse experience than the women. It has been a miracle for me.Read More Read Less

I don't know what this medication is supposed to do for me but I have the complete opposite effect of what it says you can have. I have no constipation!! I sleep great!! and I don't know if this is what it's supposed to do to you.

Was diagnosed with MS in 1984(27 yrs).I didn't have time for the MS, BUT,it hit me HARD in 1996 & had to retire from coaching. Started Amp. in 2010 for 3 months & it did nothing. Decided to give it another chance. Dumb ME! Have taken Amp. for the 3rd mo. now and as I type this, just decided NO MORE. For me it has been terrible, those who it works on,,,congrats! Symptoms are shocking sensations,all over, but a lot in my legs and feet. My feet, toes, and legs seem to be on fire! RED and swollen and BAD! Weaker body functions.Eyesight blurring, I felt better before this. My Neuro Doc said absolutely nothing about side effects. I'm going to fire my "so-called nureo doc today. Since taking amp I have also developed a "filmy" sensation in my mouth & on my teeth.SICK! FYI, I was also diagnosed with Pulmonary Fibrosis. Since the amp. it has gotten worse also. Keep fighting peeps, one day at a time!Read More Read Less

Diagnosed with MS in 2007 but probably had it for 20 yrs. Started draging right foot, memory problems, fatigue, falling. Started Ampyra July 2011 and had no improvement. Legs got worse, back pain, stumbling worse, felt like my legs were on fire, memory worse. I saw my Dr. and we decided this wasn't for me. After I got off I felt better and luckily got back to where I was. Sorry Ampyra makers, this is a bust. Glad to read this works for some but it doesn't look like a halleluia type drug to me. Good luck everybody!Read More Read Less

I've been taking Ampyra for 4 weeks now. I've had every side effect except seizure. So far I've noticed some improvement walking, but the headaches, insomnia, tingling in both feet, hands, and face, skin hot to touch, and flu-like aches in my left leg and arm leave me wondering if it's worth it. Since I'm just one month into it, I'm leaning toward giving it another month (or two) to see if the side effects subside.

I have been on this medication for 10 months, at first it seem to help, but 6 months in my walking has slowed and gate/balance has got worse.

It has helped my walking very much,do not use my cane half as much as I did before Ampyra.

I am walking much better; more energy and stamina. It took six weeks to start working. Sore throat three weeks. Then insomnia. I switched to one pill a day in the morning. Then lower back pain. It went away after three weeks. Now skin problems, maybe due to hot summer? But I'm sticking with it. We have nothing else.

Was not the "miracle drug " I expected .

Diagnosed 20 years ago and had very slow, short distance walking with my foot dragging. Had to rely on a cane and person to stay steady. Stairs were taken verry carefully. Three weeks into Ampyra I noticed the stairs were easier to take (my foot didn't drag on the step behind me). I also noticed my footing became more confident. Yes, I notice my balance seems to be a bit more wobbly, but with the Ampyra I can usually move my feet in time to catch myself! My balance issue is the most noticable side effect but it was an issue before I started taking the drug. I will admit I have a fear of the siezure side effect (even with no history) but I am more curious about the affect on the kidneys. Anyone have problems with kidney stones?Read More Read Less

After 2 weeks was only taking one a day, balance worse, optic neuritis came back after 3 years,insomnia, back pain,insomnia and in the bathroom alot. My Dr. stated work thru the side effects, not sure i want to do that. Having MS since the age of 28 and now over 40, I work thru enough :)

Amp was prescribed for me last summer to help with walking. I was mostly chair bound due to legs giving out on me suddenly ("fatigue"). I can now walk around the house and sometimes outside and my vision improved dramatically (which I don't believe is an expected effect. I have been warned to never take the two doses close together because of risk of seizure so i have at times missed a dose (unsure if I took it at the time). Life is slow and discouraging without it. I do get sick of having to answer all the questions every month instead of just talking to my doctor.Read More Read Less

I've had MS for five years. Started taking Ampyra June 2010. Immediately felt relief from summer heat, and nagging fatigue. I haven't felt this strong since the MS started. Began PT this month to work on gait and build strength back up in legs.

I have had MS for 15 years and have mild spasticity so decided to take the drug for help with walking, it worked maybe a month and now a year later I am worse, falling, walking slower stopped taking it a few days ago I hope to regain the stamina I had before I started taking the drug

I was diagnosed in 1988. I took Ampyra for 4 weeks last August, stopped due to severe burning/pins & needles in my legs and feet. It did help my walking and stamina. After I stopped, my walking was even worse than before. I saw my neurologist last week & decided to try it again - but I'm worried. I'll take one/day, not 2. I think a smaller-dose pill should be available for patients with tolerance issues.

My husband was on this drug for about 7 months. We were so excited that something was FINALLY working on his spasticity in his legs. He had no problems at all until one night we were driving down the street and he had a grand mal seizure. He had never had anything like that and it was the scariest thing I've ever seen happen to someone. We were so disapointed because he is now off of it due to the seizure and is back to having horrible spasticity in his right leg. We are looking for something else to help. Read More Read Less