Reviewer: gilenya, 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
I have not started this medication yet.I received it on Fri.I wanted to do a little more research on it before I started it,I have heard it can cause heart blockage,liver problems which I already have.I called my Drs.office on Fri.to let them know I had gotten the meds and told her I needed a little more time and she told me he wanted to do it on Wed.since he had rounds that day and I would be in ... Show Full Comment

Comment:
I have not started this medication yet.I received it on Fri.I wanted to do a little more research on it before I started it,I have heard it can cause heart blockage,liver problems which I already have.I called my Drs.office on Fri.to let them know I had gotten the meds and told her I needed a little more time and she told me he wanted to do it on Wed.since he had rounds that day and I would be in the hospital for 24hrs.So yesterday he called me and said whats the plan and I told him I wanted to wait a little longer and he told me he couldn't treat me anymore and I was fired.He also called the Gilenya people and tod them not to send me anymore pills,and the gilenya people called and informed me that they had differant meds which I didn't know about and maybe they didn't have as many side effects.I had previosy been on Avonex and was sick for 13 weeks and it affected my liver realy bad so I quit taking it and a few days later I was back to normal so maybe I'm a little sciddesh about the meds but I don't think I deserved to be fired.
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Reviewer: kmikky, 25-34 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I started Gilenya in January. It took a long time to figure out what to go on since I was on Tysabri..taking it every two months and it worked great. I talked to 2 of the best neurologists in my state and boh agreed for me it would work. I have been on it since and have had no relapse like my doctor said I might from switching drugs. I am very happy with the results, and the side effects are minim ... Show Full Comment

Comment:
I started Gilenya in January. It took a long time to figure out what to go on since I was on Tysabri..taking it every two months and it worked great. I talked to 2 of the best neurologists in my state and boh agreed for me it would work. I have been on it since and have had no relapse like my doctor said I might from switching drugs. I am very happy with the results, and the side effects are minimal. Many are concerned about the first dosage, but when I went I brought someone who would keep my mind off of it and they said my heart rate was one of the best they've seen. In my opinion it is a stressful time, but in my opinion do what you can to take you rmind off of it and it will probably go better than you think. But overall I am very happy with the drug, and the fact that it is a pill makes me remember to take my vitamins as well:-)
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Reviewer: Topeka37, 45-54 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I just turned 50, and after discovering my MS over 15 years ago, am doing better than ever. All I wanted after my diagnosis (aside from them being wrong about it), was a pill form of treatment rather than the injections. Don't know if any of these medications are actually doing anything, of if it's coincidence, but my last MRI showed NO NEW LEISIONS and some may have been smaller. I'm all for i ... Show Full Comment

Comment:
I just turned 50, and after discovering my MS over 15 years ago, am doing better than ever. All I wanted after my diagnosis (aside from them being wrong about it), was a pill form of treatment rather than the injections. Don't know if any of these medications are actually doing anything, of if it's coincidence, but my last MRI showed NO NEW LEISIONS and some may have been smaller. I'm all for it. NO side affects at all. Thanks Dr. B, for allowing me the chance to try it.
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Reviewer: 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

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Reviewer: Awt, 45-54 Female (Patient)

Comment:
After 12 years of injection site lumps and pain, this is pure heaven. I actually cried when my dr told me that a pill form was available. And then to have no side effects was a dream come true. I am healthier than i was 13 years ago. No relapses. I still can't believe it. And my first MRI after a year showed no new activity and one lesion actually disappeared.

Comment:
After 12 years of injection site lumps and pain, this is pure heaven. I actually cried when my dr told me that a pill form was available. And then to have no side effects was a dream come true. I am healthier than i was 13 years ago. No relapses. I still can't believe it. And my first MRI after a year showed no new activity and one lesion actually disappeared.
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