Reviewer: Yaya, 55-64 Female on Treatment for 1 to less than 2 years (Caregiver)

Comment:
My husband took Gilenya from November 2011 until December 26, 2012. He began having severe depression, anger issues, comfusion, loss of memory. He also passed out in September 2012 while pumping gas. After the issues became so severe in December 2012, they were discussed with his neurologist. Upon the neurologist seaching his own patient files, several other Glenya patients of his were having the ... Show Full Comment

Comment:
My husband took Gilenya from November 2011 until December 26, 2012. He began having severe depression, anger issues, comfusion, loss of memory. He also passed out in September 2012 while pumping gas. After the issues became so severe in December 2012, they were discussed with his neurologist. Upon the neurologist seaching his own patient files, several other Glenya patients of his were having the same problems. Husband has regained his sense of humor but memory and confusion still linger. I would be very wary of taking Gilenya. He has had MS since 1977 and has tried many other MS treatments for relapsing MS bu MS hasreally progressed in the last 5 years.
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Reviewer: JP, 35-44 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
My neuro called and wanted me to come in to see him ASAP, he had my blood work back. I've been on Gilenya since 8/11 and was very pleased with it. I have been keeping a UTI infection and didn't know why. last year in February, I had a grand maul seizure due to my temp going up to over 104 and was hospitalized with a very severe UTI. Now I know whey, I've been keeping an infection. Just today, ... Show Full Comment

Comment:
My neuro called and wanted me to come in to see him ASAP, he had my blood work back. I've been on Gilenya since 8/11 and was very pleased with it. I have been keeping a UTI infection and didn't know why. last year in February, I had a grand maul seizure due to my temp going up to over 104 and was hospitalized with a very severe UTI. Now I know whey, I've been keeping an infection. Just today, I saw my neuro and was told that my white blood cells count was 1,000, which is really low. Should be between 4 to 5,000. He has taken me off this drug and will be putting me on this new drug that's also a pill. I don't know the name because for now I'm not taking anything.
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Reviewer: icu1972, 35-44 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I have been on Gilenya since 6/2011. It had been working wonders for me until 1/13. This is when my immune system was completely broken down. What I mean by this is that my white blood cells droped so drastically low that I was getting thrush on my breast, constant yeast infections and colds that I could not fight. In February 2013 , my primary care doctor advised my that any common infection coul ... Show Full Comment

Comment:
I have been on Gilenya since 6/2011. It had been working wonders for me until 1/13. This is when my immune system was completely broken down. What I mean by this is that my white blood cells droped so drastically low that I was getting thrush on my breast, constant yeast infections and colds that I could not fight. In February 2013 , my primary care doctor advised my that any common infection could literally kill me since my body was not producing enough white blood cells to fight. I went to my neurologist and he agreed that I must stop Gilenya immediately or I could die from any infection. He explained that the drug is not allowing my bone marrow to produce any white blood cells needed. The drug has worked wonders for my MS. I have no new lesions and I am stable however the medicine does not realize what are healthy cells with my body and what is bad. Instead of attacking T-cells it is attacking all cells. I am not saying this side effect happens to everyone what I am saying this is a side effect that people need to be aware of so they will know what is happening. When I started getting yeast infections that is commom for women it is not something that is usually discussed with your neuro doc. It was not until I went to my primary care doctor because I was running a fever of 102 and was extremely sick that blood work was done. It was on the low end from the start of taking this med. The new test showed 1.7 and all of my WBC catagories were well below normal. This is just for anyone taking this medication to be aware and to know what to look for as a side effect and question if this is not normal for your body.
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Reviewer: kirkja1@hotmail.com, 45-54 Female on Treatment for less than 1 month (Patient)

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Reviewer: pam t., 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have been taking Gilenya about 9 months now. The first 6 months went ok, after blood tests for my liver the dr. took me off for 2 weeks and since I have started back, dizziness so bad if I am not holding on to something I feel like I would over. My health insurance just notified me they will not continue to pay for Gilenya because of the cost.

Comment:
I have been taking Gilenya about 9 months now. The first 6 months went ok, after blood tests for my liver the dr. took me off for 2 weeks and since I have started back, dizziness so bad if I am not holding on to something I feel like I would over. My health insurance just notified me they will not continue to pay for Gilenya because of the cost.
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