User Reviews for Gilenya oral

Just started so it is hard to rate effectiveness. My shot sights are so atrophied from copaxone they hurt, rebif and avonex made me ill. I couldn't figure out why I suddenly started gaining weight until I read this website, nothing in any literature about weight gain.

My daughter has MS, was diagnosed 4 years ago. She stopped all injectable medications due to side effects. With this oral medication, she takes it on time and does not miss a dose. Side effects have been acceptable.

i have been on gilenya for 1 1/2 years and my overall function has significantly improved since taking this drug - and without side effects

I am just finishing my 3rd month of being on Gilenya and am probably going to quit taking it. I feel much worse being on it. I am more exhausted than ever. I also am walking much worse. Overall feeling more numb in my legs and spasticity seems much worse. Overall weakness and imbalance-falling down more. I have not tolerated any MS drug well yet except doing Solumedrol when I have a flareup

I have not started this medication yet.I received it on Fri.I wanted to do a little more research on it before I started it,I have heard it can cause heart blockage,liver problems which I already have.I called my Drs.office on Fri.to let them know I had gotten the meds and told her I needed a little more time and she told me he wanted to do it on Wed.since he had rounds that day and I would be in the hospital for 24hrs.So yesterday he called me and said whats the plan and I told him I wanted to wait a little longer and he told me he couldn't treat me anymore and I was fired.He also called the Gilenya people and tod them not to send me anymore pills,and the gilenya people called and informed me that they had differant meds which I didn't know about and maybe they didn't have as many side effects.I had previosy been on Avonex and was sick for 13 weeks and it affected my liver realy bad so I quit taking it and a few days later I was back to normal so maybe I'm a little sciddesh about the meds but I don't think I deserved to be fired.Read More Read Less

I started Gilenya in January. It took a long time to figure out what to go on since I was on Tysabri..taking it every two months and it worked great. I talked to 2 of the best neurologists in my state and boh agreed for me it would work. I have been on it since and have had no relapse like my doctor said I might from switching drugs. I am very happy with the results, and the side effects are minimal. Many are concerned about the first dosage, but when I went I brought someone who would keep my mind off of it and they said my heart rate was one of the best they've seen. In my opinion it is a stressful time, but in my opinion do what you can to take you rmind off of it and it will probably go better than you think. But overall I am very happy with the drug, and the fact that it is a pill makes me remember to take my vitamins as well:-)Read More Read Less

I just turned 50, and after discovering my MS over 15 years ago, am doing better than ever. All I wanted after my diagnosis (aside from them being wrong about it), was a pill form of treatment rather than the injections. Don't know if any of these medications are actually doing anything, of if it's coincidence, but my last MRI showed NO NEW LEISIONS and some may have been smaller. I'm all for it. NO side affects at all. Thanks Dr. B, for allowing me the chance to try it.

After 12 years of injection site lumps and pain, this is pure heaven. I actually cried when my dr told me that a pill form was available. And then to have no side effects was a dream come true. I am healthier than i was 13 years ago. No relapses. I still can't believe it. And my first MRI after a year showed no new activity and one lesion actually disappeared.

Seems to be working, can't beat a once a day pill.

I liked getting off of the shots everyday, this makes it easy and painless.

Started taking thedrug in October of last year (2011) no side effects. Walking is much better, very noticable by others. Hand writing with right hand is also much improved. So much better than any other treatment that I've used

I been on it for over a year and have had no side effects! I also had an increased libido, great side effect. I am feeling stronger, faster, and much more energy. Great drug.

Have been on medication for a couple weeks. No major side effects and I am glad to say that I think I have some improvement. The swellig feeling that I have on the botton of my feet feels alot better. Am able to bend my toes without feeling that they are going to break...I am excited hope it gets better

I took my 1st dose on Nov 30th, 2011. For the month of December I experienced some lower back pain, extreme fatigue and headaches. Since then things have improved significantly. I am no longer having ANY side effects. I am seeing my neurologist at the end of January to find out my blood test results...fingers crossed.

After some initial nausea and related G/I stuff, I am thrilled to report that my walking has improved significantly. Faster, stronger, less limping, greater endurance. And here's a sweet little bonus: Amped up sex drive. Seriously, my libido and sensations have come back with a vengeance! Best drug ever!!

I have secondary progressive MS and this drug has stopped my progression with no side effects. I have been on it for 11 months.

Six weeks since started. Easier to get out of bed each morning, less leg stiffness until I am awake for a ½ hour, then stiffness returns. Minimal side effects… flu, canker sores in first week. After a couple of weeks started having jerks/twitches. Still have lots of fatigue and muscle spasticity.

I have been taking it for 3 weeks so far so it's hard to put a effectiveness rating but at least I haven't had any new or worsening symptoms. In fact my spasticity may be a little better. I have noticed weight gain (5 lbs in the first week which was alarming, but then it stabilized), yeast infection and canker sores also within a week of starting it, heart rate up and down, occasional dizziness and some fatigue (but not as bad as a bout of MS related fatigue). I was on Tysabri before this and did have the same problem with yeast infections recurring during the first 6 months of treatment, and am hopeful that it won't be as bad with Gilenya but am trying over the counter yeast infection prevention as well as avoiding yeast/sugary foods. Anyway, a pill is more convenient, plus less serious side effect profile than Tysabri, so I'm going with it for now. Gilenya has an assistance program that you don't need to be financially strapped to take advantage of - just don't let the Gilenya Go Program representative forget to make it work for you (pays your co-pay if you have insurance for the first year, plus the copays for the pre-treatment labs/exams).Read More Read Less