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Read user comments about the side effects, benefits, and effectiveness of Gilenya oral.

Overall User Ratings

109 Total User Reviews

User Reviews

1-5 of 72 Next»
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
5/11/2015 5:31:52 AM

Reviewer: Fee, 45-54 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 2

Comment:
Im not sure with Gilenya as I have more symptoms and not sure if its MS or the drug! I have lower back pain and down the Left leg numbness chest area which I didnt have starting this drug.My numbness right side of my head has gone which is good. I have a MRI shortly on brain and spine to compare with last year and see Neuro which will be interesting.

Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
3/11/2015 7:31:00 PM

Reviewer: jerry1, 55-64 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
HORRIBLE SIDE EFFECTS: starting the first month: cough, brief headaches daily, loss of balance, muscle cramps in leg and arm that were already weakened by secondary progressive relapsing MS. By fifth month: Worst 2 day pain ever in every muscle and joint of my body, falling every other day, seeing things moving that weren't moving, blurred vision, sore throat, hair loss, dry skin forgetting w ... Show Full Comment

Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
2/16/2015 4:14:59 PM

Reviewer: Rachel, 45-54 Female on Treatment for less than 1 month (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
Took Gilenya for 12 days and experienced several serious side effects and an onset of the disease it's meant to protect you from, MS. My symptoms included, dizziness, vertigo, balance issues, upset stomach, weakness and tiredness, heart palpation s and chest tightness,diarrhea, light sensitivity and headaches. When I stopped taking Gilenya these symptoms left after a couple of days but was l ... Show Full Comment

Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
2/3/2015 1:02:52 PM

Reviewer: 25-34 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
I’m 26 years old and I was diagnosed with MS about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever taken for MS. At the same time, I started taking an orthomolecular treatment (bi ... Show Full Comment

Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
1/24/2015 2:05:55 AM

Reviewer: MommiZ, 25-34 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I have been taking Gilenya for a year now. I have a very stressful job and would have a relapse about every 3 months. I have not had a relapse with Gilenya. I feel like my old self. I definitely don't feel 100% if I forget to take the pill. I feel a bit off. So I make every effort to take it every day.

1-5 of 72 Next»

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IMPORTANT: About This Section and Other User-Generated Content on WebMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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