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Read user comments about the side effects, benefits, and effectiveness of Benlysta IV.

Overall User Ratings

32 Total User Reviews

User Reviews

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Condition: Systemic Lupus Erythematosus
5/26/2013 12:01:36 AM

Reviewer: Jay, 45-54 Male on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 3

Comment:
with in a month of 1st infusion developed ringing in the ears- for the last 3 months develop blood blisters on hands that dry and peel. Feel horrible for about a week after infusion. Off prednisone and sulfazaline (sp) Eased joint pain but has not done anything for the fatigue, brain fog, or chronic headaches.

Condition: Systemic Lupus Erythematosus
3/21/2013 12:37:54 PM

Reviewer: jorjae1725, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 5

Comment:
I was diagnosed with SLE in 2011 and I started Benlysta infusions in 2012 and it has been a blessing to me. I suffer from severe joint pain, swelling, fatigue, and horrible migraines and since starting the Benlysta, after only 6 infusions, I feel like I am living my life again. My first few days after infusion are still a bit rough, then I start to feel amazing, about 4 days before my next infusti ... Show Full Comment

Condition: Systemic Lupus Erythematosus
3/20/2013 10:29:41 AM

Reviewer: emval, 19-24 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 5

Comment:
I was diagnosed with lupus in 2010. I had severe joint pain, fatigue and a rash on my arms and legs. In 2012 I began getting Benlysta infusions. At first I did not notice any change in my symptoms. After about 5 months I began to notice that my rash and joint pain were decreasing in severity. I have now been on Benlysta for 11 months and have seen a huge benefit from this drug. I no longer have an ... Show Full Comment

Condition: Systemic Lupus Erythematosus
1/10/2013 12:47:59 PM

Reviewer: rnapier103, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
I have suffered with SLE since 1994 & could no longer take plaquenil due to retinal toxicity. I also have RA & Fibromyalgia & am still on alot of meds for those. I do get insomnia & migranes after the infusion but it does taper off after a couple of days. I started the infusions in March 2012 & do feel better. Unfortunately, a week before my next infusion I start getting very ... Show Full Comment

Condition: Systemic Lupus Erythematosus
10/15/2012 8:40:29 PM

Reviewer: Lilly, 55-64 on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
Started December2011. I do notice a big difference in fatigue. My joint pain is somewhat better. The drawbacks for me have been insomina and migraine.

«Previous 11-15 of 32 Next»

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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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