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3.7 Overall Rating

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46 People found this comment helpful

Ever since I've been on herceptin just by itself (without taxotere and carboplatin) I've been in constant joint pain; shoulders, elbows, fingers, hips and feet nothing helps! I feel like a little old lady with arthritis but I'm only 43. Does anyone else feel this way?

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minijean40 | 45-54 | Female | On medication for 1 to less than 2 years | Patient
10/15/2008
Condition: HER2 Positive Breast Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with stage 2B HER2NEU positive breast cancer in Aug 2002. I had a lumpectomy and underwent 4 types of chemo including Hepceptin in a clinical trial from Sept thru Jan then eht Herceptin for a full year, then 5 weeks of radiation. Yes, there were side effects: hair loss, bone pain, anemia, fatigue, depression..but I am still here and cancer free SIX years later!!! I feel very BLESSED to have recieved Herceptin ( I had a 1 in 3 chance in the clinical trial) and thank God every day for the doctor that developed it!!!Read More Read Less

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inez | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
9/30/2008
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

i was pleased with the overall effectivness of this drug.

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Atlanta GA | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
7/11/2008
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I was on weekly Taxol/Herceptin for 12 weeks and am now on a regimen of Herceptin every 3 weeks for the remainder of a year. I have a lot of pain (compounded by Fibromyalgia) and fatigue hits unexpectedly but considering the chemo I've been on and radiation treatment (33) - that's not unusual. My 1st mammogram/ultrasound since diagnosis was clear - so I'm very hopeful that this drug is working. The benefits far outweigh the side effects for me. (I'm also monitored with echo cardiograms every 90 days)Read More Read Less

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jw | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
6/29/2008
Condition: HER2 Positive Breast Cancer
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have been on Herceptin since Aug of 2007. I feel confident that it is going to work for me and the side effects are worth it. I have experieced fatique,weight gain and overall soreness in my legs. These could also be from chemo that I finished in December. Can't wait to put all of this behind me!

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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
6/18/2008
Condition: HER2 Positive Breast Cancer
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
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Atlanta | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
6/12/2008
Condition: HER2 Positive Breast Cancer
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I was on weekly treatment of Taxol & Herceptin for 12 weeks - now Herceptin alone every 3 weeks for the remainder of a year. I have joint/muscle pain and difficulty walking - especially in the morning. Fatigue comes and goes and can be severe at times. I continue to work fulltime and hope this drug is working to kill the Her2+ protein.

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concerned neice | 25-34 | Female | On medication for 1 to 6 months | Caregiver
5/6/2008
Condition: HER2 Positive Breast Cancer
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

my aunt received this drug once week. each week she would report to the doctor that her cough was worsening, she would swell more, she was hoarse from day one, and never seemed to get any better. the doctor listened to her lungs and told her that there was nothing wrong with her and continued the treatments. after four months of treatment, my aunt is dead. all because a doctor is too stubborn to listen to his patient. to make a long story short, ONLY YOU KNOW YOUR BODY better than any one else. if you feel like there's something wrong, there usually is. keep letting your doctor know that you are not comfortable with herceptin infusion, if you have severe symptoms. don't let the negligence of a stubborn doctor take another life.Read More Read Less

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pamme | 45-54 | Female | On medication for 1 to 6 months |
4/10/2008
Condition: HER2 Positive Breast Cancer
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

my doctor treated me with herceptin weekly since dec. 4 2007 and since then i gain 17 pounds in four months and now i am experiencing heaviness and edema in my legs and i could'nt stand up for so long. I will probably stop it on my own if my doctor won't agree with my symptoms. I showed my legs increased about 1/4 in size and i never gain weight that much in my entire life.

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Vonnie | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
3/24/2008
Condition: HER2 Positive Breast Cancer
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

my body does not react well, to this rx. As i speak right now, I'm in severe muscle and joint pain. I've told the Dr. , however, he denies the reports I tell him. I'm stopping it myself. That is only one side effect, I have more.

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Anonymous |
3/21/2008
Condition: HER2 Positive Breast Cancer
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

This drug nearly killed me after my third infusion. By the time my doctor, who dismissed my distress over the phone, would see me in his office, my blood oxygen was 82% instead of 100%. At 80 you die. My heart was 4X bigger than normal, one lung was filled with water and one was 80% filled with water. I had ten additional pounds of water in my chest cavity. I fired my oncologist after I left the hospital a week later. He refused to admit it might be herception, but the 7 other oncs at the Regional Oncology Center disagreed with him. Every doctor who has read my chart in the past 2 years (7) have told me it is a miracle I am alive. They do not know how I made it. I did have congestive heart failure and was on 3 heart meds for nearly a year. I am 57-- very young looking and very healthy-- not overweight. I jogged for 25 years and used speed walking and nautalis after that. I was not overweight. Meanwhile, I am still cancer free. If you are going to take this drug, never let your doctor make you wait five days to be seen if you start coughing. Mine never mentioned an ER, even. He said it was nervous hysteria making me cough from the phone. NOT.Read More Read Less

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cclark | 45-54 | Female | On medication for 1 to less than 2 years | Patient
2/1/2008
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I took Herceptin for a year, ending April 2007. For the most part, I experienced no side effects. I started training for the Susan G. Komen 3-Day 60 mile walk and began having serious stiffness after long walks (6 miles or more). It was bad enough that I could barely stand up for a few hours afterwards without lifting up with arms from chair. I also experienced edema in my feet and ankles on a trip I took to Colorado Springs. Within a month of finishing the Herceptin treatments, about 90% of the stiffness went away. I was also taking Arimidex and have been taking that now for about 1-1/2 years. I still have some stiffness when getting up, but nothing like the Herceptin experience. It was only when I exercised a lot that I experienced this.Read More Read Less

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yellow dog 2233 | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
1/24/2008
Condition: HER2 Positive Breast Cancer
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

i have been on iv herceptin for 9 months. i have developed high pitched ringing in my head. i have hypersensitive hearing now, never had any problems before herceptin with my hearing and its really beginning to bother me. have also recently had edema in my left arm. my symptoms seem to have occured suddenly. wondering if anyone can identify with my experience as i am considering stopping tx. am supposed to go for a year. having trouble sleeping as well but doc wont help me with that.

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jeanelizabeth | 45-54 | Female | On medication for 1 to 6 months | Patient
1/13/2008
Condition: HER2 Positive Breast Cancer
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I experienced chills after the first treatment and my joints are stiff.(I had radiation for 7 weeks along with the Herceptin so that may be why my joints ache.) Other than that, no problems. I will be on it for a total of a year once I'm done. So far it's been about 3 months. I hope it works!

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rollerd8 | 65-74 | Female | On medication for 6 months to less than 1 year | Patient
10/26/2007
Condition: HER2 Positive Breast Cancer
Overall rating 2.0
Effectiveness
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lou ann | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
10/8/2007
Condition: HER2 Positive Breast Cancer
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I have been on IV Herceptin for 8 months. My doctor has prescribed 12 months of treatment. I have experienced fatique, slight nausea and chills for several days after each of my treatments.

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