I have Sideroblastic Anemia combined with Chronic Iron Overload and was prescribed Jadenu in hopes that my steadily increasing ferritin level would go down. The drug has been very effective in doing this however I had to stop taking it because of severe gut issues, extreme tiredness and muscle weakness caused by skyrocketing liver functions. My Doctor has taken me off the medication and now I'm ...
Chief | 75 or over | On medication for 1 to less than 2 years | Patient
11/19/2019
Condition: excess iron due to repeated blood transfusions
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Have taken this Drug since 07/26/18. Has worked for the most of the time. accouple of times Ferritin level increased, but has gone down from 3300 to 1200.
Report this post
BoogersMamma | 7-12 | Female | On medication for 1 to 6 months | Caregiver
10/12/2018
Condition: excess iron in person with non-transfusion-dependent thalassemia (NTDT)
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
My 10 year old daughter takes this medication for her Hemaglobin H Disease/Thalassemia disorder - her Iron stores were through the roof and since starting this medication, she is now iron deficient and her bilirubin level is now high. the pills are quite large and she can not swallow them, we are having to crush them and she is not a fan of the bitter taste.
Report this post
Anonymous | 55-64 | Female | On medication for less than 1 month | Patient
8/5/2016
Condition: Too Much Iron in the Blood for a Long Period of Time
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
after 10 days taking it I developed an extreme rash over my entire body. Dr. said to discontinue immediately. Have not pursued any other treatment, iron level did decrease while on the drug.
5
Report this post
Living in Wyoming | 65-74 | On medication for 1 to 6 months | Patient
5/15/2016
Condition: Too Much Iron in the Blood for a Long Period of Time
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I have Sideroblastic Anemia combined with Chronic Iron Overload and was prescribed Jadenu in hopes that my steadily increasing ferritin level would go down. The drug has been very effective in doing this however I had to stop taking it because of severe gut issues, extreme tiredness and muscle weakness caused by skyrocketing liver functions. My Doctor has taken me off the medication and now I'm in limbo as far as treatment is concerned since the anemia prevents me being phlebomotized.
IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.