User Reviews for Temodar oral

Brain melanoma, taken temodar 4per day for 5 days,off for 23 days. Fatigued after taken was only side effect while using it. Taken ffor about 2 yrs and it no longer was effective for me. Now I find myself having pain in my stomach, on right side by ribs and back area, disorientated at times, unbalanced,insommnia,hungry all the time, feel very very weak..Dr. started me on Decradron for swelling in brain area because of Radiation Necrosis of the tissue surrounding brain tumor that Radiation reduced to 1/2 in size, then Dr, said tumor was not there but Necrosis was, so tit for tot, change one for the other??? I do feel the Temodar was beneficial for me with very little side effects( not unless Temodar side effects are associated with what I have now but just took time to show up)..Read More Read Less

I am on a 23/5 cyle. I'm starting my 18th cycle today. I had two small metasticized tumore in my brain when I began taking the chemotherapy. The tumors had disappeared by the 3rd cycle.

My father took Temodar for a glioblastoma in his temporal lobe that was inoperable. He took it during radiation, and then only twice following that. It has been stable for the past several months. He hasn't taken the drug in about 6 months. He is now experience severe and almost constant stomach pain... I'm just wondering if this has anything to do with the drug because none of his doctors can figure out why he is having this pain.

This drug is awesome. I love drugs.

This drug is awesome. I love drugs.

This drug is awesome. I love drugs.

This is my second trip on temodar I have been on 100mg every day for the last 18 months fatigue can get bad they put me on adderall for fatigue have been off steroids for1 year which has caused most of my side effects my tumor is brain stem which means they can't do surgery.haven't seen much change on MRI but brain tumor symptoms are better. I was diagnosed in 1989 before chemotherapy was available for braintumors. I had 6 wkd of radiation

Been on Temodar for the past 10 months for treatment of anaplastic ependymoma. Began 7 days on, 7 off of 220 mg after radiation did not work. 220 reduced to 120 after having problems with low platelets. Last MRI said tumor is no longer visible! Staying on another few months for safety. Side effects: awful fatigue! with no apparent pattern, some days good followed by some miserable days where I sleep all day. Also, constipation, loss of appetite, bruising, possible slight memory loss(?), slight changes in math and language ability (could be surgery/radiation remnants). All bearable if it makes my tumor go away :-)Read More Read Less

I was given 6 months with tumors all over my body. That was in January. My cancer is gone now, after 3 treatments of this drug. So far, so good. I will live to see my daughters wedding day.

My husband has taken Temodar for 6 months (5days per month) and his major side effect if a rash that develops 1 - 3 days after he stops taking it. I am also noticing significant fatigue and some impairment in his ability to follow complex directions or plotlines. His brain tumor has continued to shrink as evidenced by MRIs taken every 3 months. What are the longterm effects?

Surgery 10/09 (tumor removed), then 34 radiation + 140mg temodar treatments, 30 day rest period, then began clinical trial of 220mg temodar, 7 days a week, every other week, plus 800mg of Celebrex every day. Chemo week began as not too bad, non-chemo week was great but not I do get tired if I don't control my activities. I am on my 6th month of temodar and so far no signs of another tumor. I don't know if it is too soon to rate temodar but I have nothing bad to say about it.

My mother has been taking this drug for her cancer,this was our last hope.She took the drug for 1 yr before we had any results,BUT! now her cancer is gone.She remains on this and now its been 2 yrs,now this drug is killing her.She stays confused,weight lose,memory loss,cough,very weak,fatigue,nausea,headaches,body pain all over,infection in her brain twice now,and cant walk hardly, she shuffles,must have assistance with her walking..this drug is now taking her away from us..shes been to the Drs. over these symptons and they keep adding to her drug list, shes now up to 13 different pills a day.They are treating the symptons not getting to the problem.If we do not get her off this drug/and the other drugs shes on my mother wont be here for much longer..YES! she is coming off this now!! Calling her Drs. ASAP! Drugs can help BUT! they can also KILL you!!!Dont let your loved one continue on this medicine if they are in this condition or any thing close to this,GET THEM OFF!! this can be fatal.Read More Read Less

My husband has been on this for 5 mos. with 1 treatment to go. Dr. cannot find research studies to prove it lasts any longer. So far tumor has shrunk. Only side effect is tiredness during 5-day period. Takes with anti-nausea pill.

This drug is killing my mother. She took it for 20 or so days with no side effects. Then we noticed significant bruising. Blood test showed dangerously low platelets and almost no white blood cells. She has been hospitalized for 19 days now with pneumonia and is on her death bed. The tumor is not killing her, the chemo is.

Tumor was non-responsive to treatment after 6 weeks of daily dosage followed by 2 months of monthly follow-up dosing. This was combined with 6 weeks of radiation following surgery. After the second month of follow-up dosing, tumor was found to be re-growing.

Death after taking the medication