User Reviews for Entocort EC oral

Other steroids worked much better at getting me energy again but the side effects of those weren't worth it. If those made me feel "GREAT" this one is just "OK". Joint pain has stopped and my body functions more regularly. Have not gone into remission yet after a year but this is my first flare up and they are optomistic about this working. It is VERY expensive with insurance a month is about $550.00. But the mail in from Canada for 90 days is about $15.00.

Diagnosed with crohns 40 years ago. In remission for 18 yrs. Flared 1 year ago with partial obstruction. This Rx is wonderful. No side effects, feel great after 2 months. Highly recommended. My insurer, however, just raised this Rx from tier I to tier 5. Expensive - now get it from Canada.

My doctor prescribed Entocort for collagenous colitis, variation of IBD, although I also have IBS. I have taken three courses of Entocort with amazing results. I have had nonspecific colitis for 20 years and was recently diagnosed with collagenous colitis, which thankfully this is an off-label treatment. This is a very expensive treatment, but there is a generic, budesonide, which helps. It doesn't always treat the symptoms; I also take Xifaxan for IBS, which is another wonder drug, also exorbitantly expensive. But they allow me to live a normal existence, and that means everything. I am so thankful for these drugs and Dr Craig Ellison in Alexandria, VA, who found a solution when other GI doctors didn't. Read More Read Less

After living with Crohn's for 18 years, this the second extended course of Entocort.. Current regime is alternating days of 6mg and 9mg. Generally the usual frequency of diarrhoea has been markedly reduced, S/E'e are nocturnal lower leg cramps[ Rx Quinine] a persistent cough and some mood swings. Overall I found this drug to be beneficial. Far less rugged than Prednesilone , but by no means perfect. It has delayed the the necessity for surgical excision of a 20cm stricture in the proximal ileum. The current treatment schedule will remain as is until February 2013 , then the possibility of surgery will be re- evaluated. Read More Read Less

I was on Entocort in 2009 and I felt it did not help my symptoms at all. My Dr put me back on Entocort after my colonoscopy four days after I started taking it again I woke up and my ankles were very sore and I could barely walk. It went away after a few days but the following week I woke up and my right ankle was so swollen I could not walk. I went to the ER and had X-rays done and they said I had tendonitis from my medicine. I went to a foot Dr and she sent me for a MRI which showed tendonitis and she also said it was from my medicine and now it had went to my left ankle. My GI Dr then lowered my dose but it still didn't help. I couldn't walk and I also lost 11 pounds since taking Entocort. I called my PMC Dr and begged him to help me he put me on prednisone to wean off the Entocort and within a few days the swelling went down I could walk again. I still have some pain in my stomach after eating hopefully that will go away soon. I just wanted to make people aware that this happened and it is listed as a side effect (swollen ankles) on the website pdf. Read More Read Less

The treatment for my husband has been good. Unfortunately it has not helped the pocket book (very expensive). I would like to know if there are any drug companies that have lowered the price any or would be willing?

I have had crohns for 8 years. Steroids caused lots of weight gain. I was put on entocort and I have lost some weight, i have energy now and the trips to the bathroom have slowed to maybe 6 times a day instead of 10 to 15. I take 3 tabs a day 0 mgs. It is very expensive but it is worth it! i have been in remission for a year now and I have the entocort to thank.. And Dr t young. My hero!! Every case is different. I also have diabetes so what I can eat for the crohns, I xane because of the diabetes. And the insulin causes my crohns to act up. Its like I can deal with the crohns but the diabetes scare the crap out of me. So I have to go off the entocort cause it raises my blood sugar. So Im in between a rock and a hard place!! Read More Read Less

I was diagnosed with collagenous colitis and this drug has allowed me to resume a normal life. I am not afraid to leave my house for fear that my diareha will flare up. I have been on Entocort for about 3 weeks. So far so good.

Have had Crohn's since I was 17. Removed 3/4 rths small intestine. Now 63 years old. Dr has given me Entocort and wants it taken 9 mg at once daily. Immediately was so tired it was life threatening. I can tell Dr thinks it is just me. These specialist need to have this disease one week so they have more empathy for patient. Tried Cimzia and ended up in hospital 3 times in 3 months with bacterial infection. After all these years -- lost as what to do.

At two capsuls a day my diarrhea has really improved as I was making up to 18-20 trips to the restroom a day. There is a trade off for me as I now make 5-7 trips to the restroom but constipation is causing me to spend from 30 minutes up to 2 hours per visit. I am now experiencing frequent urination. I'm not sure if the Entocort is related to this problem. I've been on Entocort for 2.5 months.

This medication for Ulcerative Colitis and it works very well but is very expensive.

After five days of Entocort I was feeling like I could live again. I had been in remission with Crohns a long time, but as Crohns does--it comes back!

My 7 year old daughter has been taking this med for 2 months now. It has been a COMPLETE blessing!! Before she missed so much school and was hopitalized 4 times. Finally after the Gastro docs at Childrens hospital done blood tests, stool samples, x-rays, the scope in both ends, byopsies and a barrium test ruled out IBD and crohns diease. Before this med my baby girl was throwing up every other week, has horrible belches and gas, stomach cramps, couldnt sleep, lost 14 pounds in 3 weeks, and we were both a complete mess. I took her out of public school and home school her know because the stress of her being bullied made her symptoms worse. Now shes down to 9 medications a day, has improved her grades and is social butterfly. Read More Read Less

Miracle drug !! dealing with diahrrea for 1 yr., tests, mis-diagnosis, etc. Finally a new dr. did biopsies and determined I have microscopic colities. After being on Asocol for 10 days which nearly killed me; Entrocort has saved my life at the moment. Have been on it for 7 days and I am getting my life back - finally. Just started to experience ankle/foot swelling today. I do have back discomfort, but also have a back problem, so not sure if Entocort is causing this. I'm also feeling very edgy; not sure of wt. gain as had lost so much before this med. I'll take the relief I've gotten any day as opposed to what I've expeienced the past year. I am taking 3/day for 1 mo., then 2/day 1 mo. and 1/day last mo. I so hope I don't have a relapse. Good Luck from misery my cohorts. ;-)Read More Read Less

I have collagenous colitis and this has helped me control the symptoms. I have some flare ups but I am wondering if I can take this drug continually.

Extremely effective in controlling gut pain and Crohn's arthritis. Especially happy that it is now available as a generic.

The weight gain, 45 pounds, and the fatigue. I cannot handle it. I am a large person anyway for some reason, Ulcerative Colitis when I was you with an illeostomy now. The work I do, outside vigorous, I cannot handle the two problems I have. It is expensive.

I have has Crohn's Disease for 10 years,been on several differents medications. This one actually works,the only downside is the price I have no insurance so it's almost $2000. I actually found a Canadian pharmacy and got it for $90.

I was diagnosed with microscopic colitis in July and was put on this medication to treat it. Before I start any medications, I read reviews just to know what to possibly expect. I have to admit that after reading a few people's thoughts on this, I was a little hesitant to take it. But I haven't experienced AY of the side effects others have and it took care of all my symptoms within a week of starting it. I still have another 3 weeks to go, but I feel like myself again!