Reviewer: BON, 35-44 Female on Treatment for 10 years or more (Patient)

Comment:
I HAVE CROHNS DISEASE. I HAVE BEEN IN THIS MED FOR TEN YEARS. I CANNOT BE OFF IT BECAUSE I HAVE A FLARE WITHIN A FEW WEEKS OF DISCONTINUATION. I DO HOWEVER HAVE LEG PAIN WHENEVER MY BODY DOES NOT REQUIRE THE MAX DOSE TO MAINTAIN BOWEL HEALTH. IT USUALLY MY TELL TO GO SEE ABOUT ADJUSTMENTS. I USE IT IN CONJUNNCTION WITH ASACOL, ALSO A STAPLE.

Comment:
I HAVE CROHNS DISEASE. I HAVE BEEN IN THIS MED FOR TEN YEARS. I CANNOT BE OFF IT BECAUSE I HAVE A FLARE WITHIN A FEW WEEKS OF DISCONTINUATION. I DO HOWEVER HAVE LEG PAIN WHENEVER MY BODY DOES NOT REQUIRE THE MAX DOSE TO MAINTAIN BOWEL HEALTH. IT USUALLY MY TELL TO GO SEE ABOUT ADJUSTMENTS. I USE IT IN CONJUNNCTION WITH ASACOL, ALSO A STAPLE.
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Reviewer: csguillotte, 19-24 Male on Treatment for 1 to 6 months (Patient)

Comment:
Other steroids worked much better at getting me energy again but the side effects of those weren't worth it. If those made me feel "GREAT" this one is just "OK". Joint pain has stopped and my body functions more regularly. Have not gone into remission yet after a year but this is my first flare up and they are optomistic about this working. It is VERY expensive with insuranc ... Show Full Comment

Comment:
Other steroids worked much better at getting me energy again but the side effects of those weren't worth it. If those made me feel "GREAT" this one is just "OK". Joint pain has stopped and my body functions more regularly. Have not gone into remission yet after a year but this is my first flare up and they are optomistic about this working. It is VERY expensive with insurance a month is about $550.00. But the mail in from Canada for 90 days is about $15.00.
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Reviewer: jesarbar, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
Diagnosed with crohns 40 years ago. In remission for 18 yrs. Flared 1 year ago with partial obstruction. This Rx is wonderful. No side effects, feel great after 2 months. Highly recommended. My insurer, however, just raised this Rx from tier I to tier 5. Expensive - now get it from Canada.

Comment:
Diagnosed with crohns 40 years ago. In remission for 18 yrs. Flared 1 year ago with partial obstruction. This Rx is wonderful. No side effects, feel great after 2 months. Highly recommended. My insurer, however, just raised this Rx from tier I to tier 5. Expensive - now get it from Canada.
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Reviewer: Merv S, 65-74 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
After living with Crohn's for 18 years, this the second extended course of Entocort.. Current regime is alternating days of 6mg and 9mg. Generally the usual frequency of diarrhoea has been markedly reduced, S/E'e are nocturnal lower leg cramps[ Rx Quinine] a persistent cough and some mood swings. Overall I found this drug to be beneficial. Far less rugged than Prednesilone , but by no means perfe ... Show Full Comment

Comment:
After living with Crohn's for 18 years, this the second extended course of Entocort.. Current regime is alternating days of 6mg and 9mg. Generally the usual frequency of diarrhoea has been markedly reduced, S/E'e are nocturnal lower leg cramps[ Rx Quinine] a persistent cough and some mood swings. Overall I found this drug to be beneficial. Far less rugged than Prednesilone , but by no means perfect. It has delayed the the necessity for surgical excision of a 20cm stricture in the proximal ileum. The current treatment schedule will remain as is until February 2013 , then the possibility of surgery will be re- evaluated.
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Reviewer: Neela, 35-44 Female on Treatment for less than 1 month (Patient)

Comment:
I was on Entocort in 2009 and I felt it did not help my symptoms at all. My Dr put me back on Entocort after my colonoscopy four days after I started taking it again I woke up and my ankles were very sore and I could barely walk. It went away after a few days but the following week I woke up and my right ankle was so swollen I could not walk. I went to the ER and had X-rays done and they said I ha ... Show Full Comment

Comment:
I was on Entocort in 2009 and I felt it did not help my symptoms at all. My Dr put me back on Entocort after my colonoscopy four days after I started taking it again I woke up and my ankles were very sore and I could barely walk. It went away after a few days but the following week I woke up and my right ankle was so swollen I could not walk. I went to the ER and had X-rays done and they said I had tendonitis from my medicine. I went to a foot Dr and she sent me for a MRI which showed tendonitis and she also said it was from my medicine and now it had went to my left ankle. My GI Dr then lowered my dose but it still didn't help. I couldn't walk and I also lost 11 pounds since taking Entocort. I called my PMC Dr and begged him to help me he put me on prednisone to wean off the Entocort and within a few days the swelling went down I could walk again. I still have some pain in my stomach after eating hopefully that will go away soon. I just wanted to make people aware that this happened and it is listed as a side effect (swollen ankles) on the website pdf.
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