User Reviews for Mestinon oral

After having a tumor removed from my throat, I woke up with an eye lid that would not work. Finally my neurologist, three months later--just before my surgeon was ready to send me to have eye surgery, tried this drug. I've only been taking it for two months but within the first week it had made a hudge difference in my eye. I've lost almost 8 pounds and I do mean the way no one wants to lose weight. The stomach cramps are tremendous and loud. And did I mention often? Sometimes I can eat but most of the time I have no taste for food. If I didn't have a family this might would work easier. I have the fatigue, runny nose or should I say suprise! If you get your hands full, you better have a tissue really close...there is no warning, just a sudden drip. Each day I think this is the last day I can do this but I try one more day. The dizzy feeling and vision problems make me wonder if it's worth it. But if I stop, I might not know the answer. I take 60 mg 3 times a day.Read More Read Less

I have all the symptoms of MG, drooping eyelids, double vision, difficulty swallowing, eye weakness. Had every test in the world for MG some positive some not. I took mestinon 3 years ago with little improvement. We decided to do eye surgery instead and now I am right back where I started. Started mestinon again, eyes are a little better but not sure if the side effects are worth it. MUSCLE WEAKNESS & CRAMPS, FATIGUE. DO U HURT AND SEE BETTER OR NOT TAKE IT AND DEAL WITH THE VISION PROBLEMS?Read More Read Less

It's only been a few days, but you notice the improvement right away. I have Class I, where it's just the eyes, and I have had it for 21 years. The drug was first prescribed recently, after an airtight diagnosis (finally!) ... It works. The side effects are mostly gastric, but tolderable. However, I should point out that I only take 30mg three times a day. So far, so good!Walking seems easier, too.

still having problems w/dizziness and headaches.

*up date* mestinon i had to stop this drug that i was giving my dog, side effects became worse my dog had so much mucus coming out of her mouth and she couldn't control the mucus when she past gas or had a bowel movement got so bad stop the mestinon either would had to put to sleep still has droopy eyes and congested also calaspes but now we know that her symtoms get better as long as she rest its been a year now that i stopped the mestinon and she hasn't gotten any worse and i didn't have to put her to sleep thank goodness some days her lungs sounds bad and than and the next day they seem better she does better being in air conditioning in warm weather she breaths better.so hopefully she won't get worse.Read More Read Less

medication has had no effect

I was diagnosed with MG in january of 2007, I had double vision really bad. My Doctor decided not to remove my thymus gland due to other complications. It took about 3 months for the medicine to kick in and start to work well {meanwhile i wore an eyepatch}. The only problem I experienced with the medication, was severe stomach cramps. For this my MD prescribed prevacid, and it has work pretty well.

I went for 6 months undiagnosed with ptosis, diplopia, nystagmus, muscle wasting, fatigue, unexplained weight loss, and diaphragm weakness (this is the main symptom that threw doctors off course. The first day I took this wonderdrug my nystagmus disappeared and by day two so did the diplopia and ptosis. I have only been on it for two weeks so I'm sure it will take time for my diaphragm and limb muscles to regain their size and strength. The only complaint I have is that I have to divide my pills and they crumble on the ends when I do so. I'm on the generic form and the score on the pills is not very deep. Also when I stored it with my other medication (in a weekly pill divider) the exterior of the pills turned to pasted and they crumbled when I picked them up. Thankfully I didn't lose too many before I noticed. All in all I am very thankful to have Mestinon available for this very troublesome and at times downright scary condition.Read More Read Less

I had a thymectomy in November of 2008. I was taking 60 Mg every 4 hours but is was causing too much twitching in the eyes. So my doctor and I reduced the dosage to 30Mg and everything has been stable. Over the last few weeks I was having issue with my jaw and tongue so I up the dosage to take care of it. It has caused my stomach to go a little crazy but I am reducing the dosage back to 30 Mg because of that. My MG symptoms are mostly on my right side. I do get cramps in my right foot and right hand often but hey I can still breath and swallow. Something I was having problems doing before my surgery. I think if you self manage the dosage amount that best fits your situation you can minimize most of the side affects. My doctor told me that if you take too much it can cause the same side affects of not taking any at all. More is not always better. Any questions just ask.Read More Read Less

I was diagnosed with Myasthenia Gravis in 2001 and took Mestinon for the first time... barely kept me breathing after myasthenic crisis. Went into remission few months later (6yrs remission!)and stopped all treatment. Symtoms resurfaced 2007 tried mestinon but cramps were so bad had to stop and symptoms did not worsen till 1&1/2 yrs later July 2009. Back on Mestinon and it's working great! I can walk,I breathe normally,my eyelids manage to stay open, I have normal energy, for me that is! I am taking 90 mg 3 times/day & timespan 180mg at night. The severe stomach cramps seem to occur in the early morning hours, I twitch alot(legs,arms and head), I have bad diahrea but I am back at work so I guess all is good! There are worse things than Myasthenia in life. I choose to look on the bright side.Read More Read Less

I have been taking Mestinon for about 1 year, it did improve my double vision almost immediately,but nothing else, I am weak, have explosive diarrhea, muscle cramps in hands, feet, legs, stomache. Have tried taking 1/2 tablet every three hrs. Nothing seems to make a difference. Also have had 3 rounds of IVIG, take Cellcept, Predisone. Have been hospitalized in crisis. Really getting very depressed.

mya.. gravis began in March 2009. Took mestinon and condition went away in approx. 2 weeks. I discontinued the treatment, and recently the condition reappeared in early August. This time, however, the mestinon hasn't worked as well, small improvement but still "droopy eyelid".

I have been taking Mestinon only for 2 weeks now and have managed to stop the stomach problem by taking Probiotics and Psyllium Husk before I take the tablet. I have also manged to stop the cramps in my legs by taking a combination tablet of Magnesium, Calcium and pottasium [it's only one tablet at a time and works wonders along with stretching.

The problem I have with this drug is that you are not supposed to break the tablets, but I require 90mg every 4 hours to control my Myasthenis Gravis and they are only available in 60 mg tablets. the tablets are very difficult for me to break evenly as I have arthritis in my hands and a pill splitter usually shatters the tablet.

I was recently daignosed with Myasthenia Gravis. This drug, along with the time-release, is helping me be kept out of the ICU. I suffered a Myasthenic Crisis and I'm thankful that there is a drug out there that can prevent another crisis from happening. My teenage life wouldn't be the same without it. I take 3 60mg pills througout the day and one time-release at night, so in the morning I won't be as weak.

Without Mestinon, my Myasthenia Gravis would be out of control & I would be in the hospital.

I was diagnosed with Myasthenia Gravis a week after my 18th birthday. I am on a regular 90 mg mestinon and also timespan(180mg).Without my mestinon I would not be able to speak,swallow, or even move. This drug has made me able to be 90% normal again. Although with my condition I do find myself taking it quite often, its the best drug out there.

I still have double vision after taking this drug. Also have terrible muscle spasms and cramps at night or when trying to relax.

I was diagnoised w/MG on 1/2/2009. My provider Rx this drug & I have reported to him sever muscle cramps in legs & feet, arms & hands along with twitching, shakes sleeping 12 hrs per night 2 in afternoon. He is telling me he has no idea what is causing these problems. I thank God for the internet. He is one of the dr. on MDA web site that is SUPPOSE to specialise in MG. Apparently MDA needs to take another look at the Dr they post. I can hardly walk or get out of my chair with out help. I am going to go to the clinic wih this info and show it to a different Dr. Wish me luck.Read More Read Less